This post is a very exciting post for me to write. Most of all I want you to look at the pictures because it's my most exciting accomplishment in a very long time. I wrote a letter to our Michigan House of Representatives, Rep.Diane Slavens, last year. I asked if we could get a resolution to make November be a "legal" month for Awareness of RSD/CRPS, in Michigan; where I live.
Well ..,yesterday in my mailbox I got some exciting news. I opened up something that was addressed to me from the Michigan State House of Representatives . I opened the large manilla envelope, to find “Resolution #267″. It states that ;”in the state of Michigan, November will be legally now, RSD/CRPS awareness month”. There are many many things in the resolution and a number of representatives signed it. I am so excited that I actually got something done and accomplished in the awareness arena for RSD/CRPS! You can look at the pictures below, which is why I put a many photos. I hope that you will take the time to look at them.
I’ve been an administrator and originator of a support group for people in pain and with invisible diseases; especially RSD/CRPS since 2007. I think trying to get something done to help awareness and to support people like myself; who suffer from this very painful, progressive and debilitating disease, is so important. There are many people who are aware of breast cancer and of other cancers, Lupus, Rheumatoid Arthritis (which I also suffer with), Fibromyalgia and other debilitating diseases. Many people don’t know about the pain and suffering of Reflex Sympathetic Dystrophy a.k.a. Complex Regional Pain Syndrome.
Through my “CAUSE,” which is called “R. A. S. E. For Invisible Diseases” (www.causes.com/RASEforinvisiblediseases), Meaning : “Race for Invisible Diseases”,and through my work as a Health advocate for RSD/CRPS & other chronic pain illnesses, I have tried to have our voices heard.
Well I think that We’ve finally had our voices heard. Someone listened to me and someone cared. That person was Michigan House of Representatives, Rep., Dian Slavens. She cared enough to put this through for me and for all of us in pain; and for those suffering with RSD/CRPS. We now have a month that is dedicated just to our CAUSE: ” Reflex Sympathetic Dystrophy”, also known as “Complex Regional Pain Syndrome”. I just want to take a moment to say thank you so much, from the bottom of my heart. This means so much to many people, not just me. Again I say “thank you”. In Michigan House of Representatives resolution # 267, our voices have been heard !! Now… All of you who are suffering, please help me spread awareness and support for this horribly debilitating, progressive and painful disease!
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