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Dysautonomia and POTS Information

Published on June 9, 2014 by Suzanne

Dysautonomias_Handbook6X9small.pdf · version 1

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Link•Categories Dysautonomia/ANS failure/POTS, Miscellaneous•Tags Dysautonomia, faint, fainting, NCS, Neurocardiogenic Syncope, Postural Orthostatic Tachycardia Syndrome, POTS, RAS, STARS, Syncope

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Suzanne

Suzanne

Hello Luvs, I am a survivor first! I am also a Chronic Pain Patient who is hard of hearing and lives with Systemic-Full Body RSD/CRPS. It is the highest form of chronic pain, at #45 on McGill Pain Scale. Along with RSD/CRPS, I live with several other high pain chronic illnesses. In an attempt to keep my spirits up & to help others, I am involved with a few Awareness & Advocacy activities online: 1) I continue to be a mentor for newly DX RSD/CRPS patients for RSDSA & I do guest blogging for them 2) I'm a blogger and freelance writer 3) I’m a Patient Leader for WEGO Health 4) I’m the Social Media Assistant for Jim Broatch at RSDSA. In the recent past; I’ve helped IDA during Invisible Disabilities Awareness weeks & was featured on their "Invisible No More" YouTube Channel in 2010 or 2012. On other Social Media, I help teach American Sign Language vocabulary for the "Deaf Socials”. I not only blog for my own therapy of sorts, but with the hope of helping others. Some other areas in which I try to volunteer when Im able, are: 1) I've been a Chemo-Angel, Card Angel, Special Assignments Angel and Prayer Angel for the "Chemo-Angels" program since 2005. 2) I've been a Patient Health advocate since 2007 3) I also have a sign Language Youtube channel where I post ASL Covers of Many different kinds of uplifting songs. (*The ASL Youtube page is found at: www.YouTube.com/ASLSuzyQ). Along with doing these things; I have held awareness events, fundraisers and have helped with other programs. In 2018, I was appointed to the US Pain Foundations Board of Directors. I stayed on for only 9 months due to internal turmoil & corruption. I tried to stay to help rebuild USPF, but it felt to me as though things went from bad or worse. My integrity pushed me to leave USPF behind and I resigned 9-2018. I always say that "HOPE is a verb, and in order to have lit, you must do something". To keep it, you have to keep doing, trying and not give up. Most everything you need to know about me, or to find me on Social Media, you can find at: about.me/suzydukettes ...OR at TearsofTruth.com **I am not a Medical personnel nor do I claim to be an expert regarding any of the subjects I may write about. I write from my own experiences. Also, Please don't copy or reproduce any part of this blog without my permission. Thank you!

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Pain Awareness month 2018 Canton MI Public library display
Pain Awareness month 2018 Canton MI Public library display
Pain Awareness month 2018 Canton MI Public library display
Pain Awareness month 2018 Canton MI Public library display
Pain Awareness month 2018 Canton MI Public library display
Pain Awareness month 2018 Canton MI Public library display
Pain awareness month Beautify in Blue 2018
Pain awareness month Beautify in Blue 2018
Pain awareness month Beautify in Blue 2018
Pain awareness month Beautify in Blue 2018
Pain Awareness month 2018 Canton MI Public library display
Pain Awareness month 2018 Canton MI Public library display
Pain awareness month Beautify in Blue 2018
Pain awareness month Beautify in Blue 2018
Pain awareness month Beautify in Blue 2018
Pain awareness month Beautify in Blue 2018
Pain Awareness month 2018 Canton MI Public library display
Pain Awareness month 2018 Canton MI Public library display
Pain awareness month Beautify in Blue 2018
Pain awareness month Beautify in Blue 2018
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Pain Awareness month proclamation from MI Gov. Rick Snyder
Pain Awareness month proclamation from MI Gov. Rick Snyder
Pain Awareness month proclamation from MI Gov. Rick Snyder
Pain Awareness month proclamation from MI Gov. Rick Snyder
Pain Awareness month proclamation from MI Gov. Rick Snyder
Pain Awareness month proclamation from MI Gov. Rick Snyder
Pain Awareness month proclamation from MI Gov. Rick Snyder
Pain Awareness month proclamation from MI Gov. Rick Snyder
Pain Awareness month proclamation from MI Gov. Rick Snyder
Pain Awareness month proclamation from MI Gov. Rick Snyder
Pain Awareness month proclamation from MI Gov. Rick Snyder
Pain Awareness month proclamation from MI Gov. Rick Snyder
Pain Awareness month proclamation from MI Gov. Rick Snyder
Pain Awareness month proclamation from MI Gov. Rick Snyder

Pain Awareness Month 2018

check out the new gallery of photos for Pain Awareness Month 2018.

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Suzanne Stewart

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  • Copyright info…2/6/07
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Support IN Jewelry…..Awareness/Support & More-Designs By Suzanne

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  • Home
  • My Advocacy Pages On Social Media:
  • My Featured Videos
  • ASL Cover Songs-You Tube Channel Info
  • My You Tube Channel For Advocacy And Info
  • Link to PDF file RSD/CRPS By Dr. R. Swartzman MD
  • SupportInJewelry.Tumblr.com
  • Quotes to live By And to Ponder!
  • Copyright info 2/6/13
  • Health Advocate
  • chronic pain
  • Opioids
  • Dysautonomia/POTS And S.I.B.O
  • Articles Authored by Me On National Pain Report

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CRPS Advocacy Photos

File Nov 13, 11 14 51 PM
alot of CRPS awareness
alot of CRPS awareness
helping with the students at the University's project about CRPS
helping with the students at the University’s project about CRPS
spreading awareness with our Soldiers
spreading awareness with our Soldiers
awareness event and me at a table talking to people, advocating
awareness event and me at a table talking to people, advocating
me at EMU for awareness event
me at EMU for awareness event
just Me "Keeping Hope Alive"
just Me “Keeping Hope Alive”
talking about CRPS for Awareness at EMU in MI
talking about CRPS for Awareness at EMU in MI
Processed with PICSPLAY
Processed with PICSPLAY
Photo Nov 08, 10 01 38 AM
kitty cat awareness for CRPS
kitty cat awareness for CRPS
support group "meet ups" in MIchigan
support group “meet ups” in MIchigan
friends with CRPS "Meet up" Processed with PICSPLAY
friends with CRPS “Meet up” Processed with PICSPLAY
just me
just me
setting up for awareness review
setting up for awareness review
my husband, craig sporting his RSDHOPE.ORG t-shirt and supporting Awareness for CRPS
my husband, craig sporting his RSDHOPE.ORG t-shirt and supporting Awareness for CRPS
Processed with PICSPLAY
Processed with PICSPLAY
working with the College students
working with the College students
a collage of support for CRPS
a collage of support for CRPS
CRPS Awareness ribbon
CRPS Awareness ribbon
awareness jewelry at: Support In Jewelry on Facebook (www.facebook.com/supportinjewelry
awareness jewelry at: Support In Jewelry on Facebook (www.facebook.com/supportinjewelry
House Resolution #267 that I for Michigan in 2013
House Resolution #267 that I for Michigan in 2013
me with awareness in mind
me with awareness in mind
a GIF
a GIF
my husband & Me for CRPS Awareness
my husband & Me for CRPS Awareness
file-jan-06-9-12-00-pm

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This is an article you won’t want to miss if you are affected by the opioid hysteria....: tearsoftruth.com/2019/02/18/ant… @NBCNews @FoxNews @greggutfeld @GregGutfeldShow @PainNewsNetwork #opioidhysteria #opioidcrisis #untreatedpaincrisis
#opioidhysteria #opioids #chronicpain #chronicpainawareness #invisibleillnesses
#painwarrior #chtonicillness #chronicpain #eds #rsd #crps #ra #gastroparesisis #sibo #chiari #ptsd #spinalstenosis
#Repost @chronicallycranky with @get_repost ・・・ This 👏👏👏👏 #occipitalneuralgia #trigeminalneuralgia #flareup #chronic #chronicpain #chronicillness #fibromyalgia #fibrofog #rheumatoidarthritis #migraine #invisableillness #chronicfatigue #autoimmunedisease #mumproblems #chronicpainwarrior #rawarrior #youdontlooksick #ibs #endometriosis #endowarrior #tired #fatigue #chronicillnesswarrior #fibrowarrior #chronicillnesslife #dailymemes #quotes
Read this article at: tearsoftruth.com #opioidhysteria #opioidcrisis #opioids #opioidsdontkill #stopthewaronpainpatients #tsd #crps #crpshope #chronicpainwarriors
A great resource for Information & support,as a closed group on Facebook! This group was founded in 2008! Here’s the link: https://m.facebook.com/groups/595002883961863?ref=share #rsd #crps #crpshope #rsdsupport #rsdinformation#crpssupport #crpsinformation #chronicpain #invisibleillness
#pacemaker #hearthealth #arrythmia #arrythmiaalliance #dysautonomia #pots
Happy Crazy Socks Day!! Support for the Awareness of RSD/CRPS! Wear crazy socks today & post your photo & tag us @raseforcrps for a chance to win a RSD/CRPS Ribbon temporary tattoo!! #rsd #crps #crpshope #crazysocksday #crazysocksday2019 #crazysocksdayforrsdcrps
Happy Crazy Socks Day!! Support for the Awareness of RSD/CRPS! Wear crazy socks today & post your photo & tag us @raseforcrps for a chance to win a RSD/CRPS Ribbon temporary tattoo!! #rsd #crps #crpshope #crazysocksday #crazysocksday2019 #crazysocksdayforrsdcrps

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Instagram RASEforCRPS

#RSD #CRPS #pain warrior #chronicpain. #raseforcrps
#Repost @chronicallycranky with @get_repost ・・・ This 👏👏👏👏 #occipitalneuralgia #trigeminalneuralgia #flareup #chronic #chronicpain #chronicillness #fibromyalgia #fibrofog #rheumatoidarthritis #migraine #invisableillness #chronicfatigue #autoimmunedisease #mumproblems #chronicpainwarrior #rawarrior #youdontlooksick #ibs #endometriosis #endowarrior #tired #fatigue #chronicillnesswarrior #fibrowarrior #chronicillnesslife #dailymemes #quotes
Read this article at: tearsoftruth.com #opioidhysteria #opioidcrisis #opioids #opioidsdontkill #stopthewaronpainpatients #tsd #crps #crpshope #chronicpainwarriors
A great resource for Information & support,as a closed group on Facebook! This group was founded in 2008! Here’s the link: https://m.facebook.com/groups/595002883961863?ref=share #rsd #crps #crpshope #rsdsupport #rsdinformation#crpssupport #crpsinformation #chronicpain #invisibleillness
Happy Crazy Socks Day!! Support for the Awareness of RSD/CRPS! Wear crazy socks today & post your photo & tag us @raseforcrps for a chance to win a RSD/CRPS Ribbon temporary tattoo!! #rsd #crps #crpshope #crazysocksday #crazysocksday2019 #crazysocksdayforrsdcrps
Happy Crazy Socks Day!! Support for the Awareness of RSD/CRPS! Wear crazy socks today & post your photo & tag us @raseforcrps for a chance to win a RSD/CRPS Ribbon temporary tattoo!! #rsd #crps #crpshope #crazysocksday #crazysocksday2019 #crazysocksdayforrsdcrps
https://tearsoftruth.com/2019/01/23/palliative-care/ #opioidhysteria #palliativecare
#icandoit #imonlyhuman #chronicillness #rsd #crps #systemicrsd #painwarrior
#Repost @aslsuzyq with @get_repost ・・・ #stronger by @mandisaofficial #ptsd awareness #tiktokcreator #youtuber #ptsd is difficult in any #language #silentnomore #domesticviolencesurvivor #narcissisticabusesurvivor #survivorofabuse #childabusesurvivor #emotionalabusesurvivor #sexualabusesurvivor #physicalabusesurvivor ** thank you to the #domesticviolenceisreal *** PTSD is difficult with flashbacks and nightmares especially....surviving one day at a time!.

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