From A CRPS Warrior


Hello Luvs,

I needed to copy and post/paste this message from a fellow pain warrior on Facebook! I have “Doreen’s” permission to copy and then share her post on my blog! What’s happening right now, this very moment is so important … So without further ado; please read on and find some wonderful words from a fellow CRPS/pain warrior:

**************************** 

   
This is the original post made by Doreen Mae Horrigan “Doe”…she receives all credits for this piece of writing; which Inthrn copied & posted with her permission. (Thank you for your friendship, Doe)…******

#NERVEmber may be coming to a close in 2015 for #paintingtheworldorange etc though not for us who suffer and fight for answers treatments and a cure for #CRPS #RSD PLEASE CONTINUE TO WEAR ORANGE TO SHOUT OUT ABOUT THIS EVIL “DIS- EASE” AND THE FIRE AND NUMEROUS DESTRUCTIONS WITH LONG TERM HAVOC ON OUR BODIES AS A WHOLE….PEOPLE FIND IT TABOO TO SPEAK OUT ABOUT HOW MANY PEOPLE DIE FROM THIS DISEASE WHETHER HEART LUNGS CANCER NEURALGIA NEUROPATHY DYSTROPHY OF MUSCLES SEAIZURES FIRE HEAT SWELLING SWEATING TREMORS SEVERE ACUTE FATIGUE MITOCHONDRIAL DYSFUNCTION ARTHRISTIS HEART ILLS ARRHYTHMIA MVP AUTOIMMUNE FAILURE HYPER SENSITIVITY TO COLD ALLODYNIA ON AND ON THIS IS RSD SO MANY OTHER ILLS SPINAL DETERIORATION ORGAN FAILURE AND DEPRESSION AND ANXIETY ( EXESSIVE PAIN CAUSES THIS) ETC ETC ALSO THE PAIN IS SO OFF THE CHART WITH ACUTE TO CHRONIC FLARES 24/7 I’M TIRED BUT I’M MORE TIRED OF THE LACK OF REAL CARE LACK OF SPECIALISTS THEIR IGNORANCE (HELLO GOOGLE RESEARCH IT ALL HERE POWER OF PAIN FOUNDATION ALL THE GROUPS JOIN READ LEARN HELP BE PRESENT…..We are losing people all the time great beautiful intelligent educated Kids Moms Dads singles in relationships talented young to mid age weekly monthly yearly…I’ve read so many “last written posts” and (obits) when they just can’t take it anymore…like the recent death of a HSN MODEL ON TV IN FLA…YES GORGEOUS THOUGH FAKING IT TO MAKE IT AND SHE IS NOW GONE. SUICIDE IS NOT THE COWARDS WAY OUT IT IS TO END THE SUFFERING SINCE THE DOCTORS DON’T KNOW HOW…FOCUS ON THE GLIAL CELLS OF THE BRAIN…Yes pain management is a huge part but it is not the solution if its not the correct care…I don’t use opiods they make me feel horrible and still the pain the antigen in my knowledge is and has been being worked with though doctors feel like oh pain management when RSD or other neuro muscular skeletal disorders pop up get to the heart of the matter GLIAL CELLS THE HOUSE OF EXCESSIVE PAIN RECEPTORS… KEEP FIGHTING WARRIORS AND EVERYONE WHO REACHES OUT AND HELPS RAISE AWARENESS THANK YOU…TRY TO REMEMBER THE ORANGE OF NOVEMBER AND WHY…HELP HELP YOUR LOVED ONES ALL YEAR ROUND…THIS IS AND BECOMES AN INSULAR DISEASE…LONELINESS IS NOT WHAT ANYONE WANTS. LOVE LOVE LOVE.DOREE THANKS AND AMEN! Doreen Mae Horrigan Doe O:-) to Barby Ingle Sarita Bissett Neice Bacon Mary Morrison Petty Lydia Suzanne B. Stewart Susie Meneely Vicky Ayling Leslie Degnan Jen Bryant Cope Marsha Tyszler Lori Drummond and so many other warriors please post your name here for all of us I was diagnosed in 2002 with RSD prob began in 1995 and no one knew until more trauma it got much worse in 2009 more trauma a car accident I was driving and rear ended then acute attack to my body swellling in 2011 the 2012 I had no help from the hospitals or doctors on a cane as it the went to my feet and legs crazy attack pain like no other and more in 2013 with repetitive shingles in my brain to face the trunk of stomach now repetive due to not properly diagnosed etc et autoimmune tachycardia MVP to mot diagnosed on time for 5 yrs robbed mitochondrial dysfunction trigeminal neuralgia phn phi spinal deterioration fibromyalgia etc etc YES I AM A WARRIOR FOR INVISIBLE TO VISIBLE DISEASE AND I WANT TO GO TO NEXT YRS WORLS LARGEST DISCO (Which was last. night I want to roller skate (blade) dance work out walk to get in better shape ride a bike ice skate run } was a sprinter cheer coach I want to be a Mom a wife have a beautiful home move out of this place yes I need help I have lots of things clothes I cant wear they hurt me to wear or I sweat and burn up…though I love style I have lots of fashion magazines I’d like to sell so I can clear my path and get more out of pocket treatments. I want to go to parties with friends I dont see or rarely talk with anymore their lives go on I’m left behind. I am not writing this to be a downer or for my own personal attention (so many beieve that not true it is tough and I would be the 1st one out there when I could for everyone I have cared for and loved why cant I have that in return) though I bet my fellow fighter brave warriors can relate…I’m purging my thoughts as 2015 NERVEmber comes to a close my legs don’t like well my whole body wants out of this damp old asthma triggering apartment so please pray that I 1st get my home for a Christmas miracle…filled with beauty love healing laughter family and friends…that is what I hope for for Christmas. GOD BLESS YOU ALL. ~ Doe XOXO