Scars To Your Beautiful, ASL

Published on August 4, 2017August 4, 2017 by Suzanne

Scars To Your Beautiful by Alessia Cara done in ASL (please refer to my YouTube channel at: www.youtube.com/c/ASLSuzyQ ….Please Subscribe

Suzanne

Hello Luvs, I am a survivor first! I am also a Chronic Pain Patient who is a Deafie. I live with Systemic-Full Body RSD/CRPS. It is the highest form of chronic pain, at #45 on McGill Pain Scale. Along with RSD/CRPS, I live with several other high pain chronic illnesses, including: EDS4, Dysautonomia/POTS, Gastroparesis, Chiari, Migraines and more. In May of 2019, I had a brain tumor/auditory tumor called “Cholesteatoma” found. In July 2019, I had a Big surgery called “Tympanomastoidectomy” with a prosthetic Anvil-hearing bone to replace my diseased bones and oscillar chain. I’m Deaf/HOH and I wear 2 hearing aids. I am a proud member of the ASL Deaf community. In an attempt to keep my spirits up and to help others, I am involved with a few Awareness and Advocacy activities online: 1) I continue to be a mentor for newly DX RSD/CRPS patients for RSDSA & I do guest blogging for them 2) I'm a blogger and freelance writer 3) I’m a Patient Leader for WEGO Health 4) I’m a Mentor for persons with RSD/CRPS (I volunteer for Jim Broatch at RSDSA). In the recent past; I’ve helped IDA during Invisible Disabilities Awareness weeks On other Social Media; I am a Deaf Performance Artist and I teach American Sign Language culture, history and vocabulary on Instagram and on YouTube @ASLSuzyQ. I have a Facebook group “ASLExpress” at: www.facebook.com/groups/ASLExpress. My Facebook Page @ASLSuzyQ is for Deaf current information, ASL, History, Community and Culture. I not only blog for my own therapy of sorts, but with the hope of helping others. Some other areas in which I try to volunteer when Im able, are: 1) I've been a Chemo-Angel, Card Angel, Special Assignments Angel and Prayer Angel for the "Chemo-Angels" program since 2005. 2) I've been a Patient Health advocate since 2007 3) I also have a sign Language Youtube channel where I post ASL Covers of Many different kinds of uplifting songs and Deaf History, Culture, Language (ASL) and Community. (*My ASL Youtube page is found at: www.YouTube.com/ASLSuzyQ). Along with doing these things; I have held awareness events, fundraisers and have helped with other programs. In January 31, 2018, I was asked to be on the US Pain Foundations Board of Directors. I did not actually start until end of March. I was an active Board Member on for only 6 months. I left after finding out about their internal turmoil and corruption. At the beginning, I tried to stay to help rebuild USPF, but it felt to me as though things went from bad or worse. My integrity pushed me to leave USPF and I resigned 9-2018. I was given a "Special Tribute" Award in 2017. This award was given to me by then MI Governor, Rick Snyder, for my advocacy and social work within the Pain Community. I always say that "HOPE is a verb, and in order to have it, you must do something". To keep it, you have to keep doing, trying and not give up. **I am not a Medical personnel nor do I claim to be an expert regarding any of the subjects I may write about. I write from my own experiences. Also, Please don't copy or reproduce any part of this blog without my permission. Thank you!

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