Human Rights Group Addresses Opioid Issue


 

I was uplifted to see that someone is finally standing up for the rights of 100 million chronic pain patients in these United States of America. We’ve been waiting for a group, a person, a physician or anyone to stand of for this group of people who are mostly too busy worrying about Dr. appointments and just carrying out daily tasks of living to advocate for themselves . Those who deal with daily pain are often too weak to form a huge protest, fight with signs and stand on Capitol Hill for days or hours at a time. Many of us have written letters and tried to encourage people to respond to the FDA docket. Many people have done what they could do to help, while living with illness, chronic pain and debilitating fatigue.

This past week I was so happy to find that a Human Rights group called “Human Rights Watch” has taken an interest in our cause. Someone has finally noticed that ignoring a large group of citizens who live with chronic pain and who are being largely untreated or under-treated, is inhumane! This Human rights group has reported on other forms of torture throughout the third world countries as well. They are based in New York and at last, they are looking towards helping the people at “home”, in the USA. They were doing research on cancer patients and were shocked to find that so many had lost their pain control/relief. This is considered torture in many other countries. Before this Opioid issue began, I never would have believed that the USA would want to torture their most fragile citizens? Hopefully this advocacy group will truly help this cause. They could begin by reversing the effects of the CDC guidelines and by helping to keep the government (and politics) out of practicing medicine. In my opinion, it feels as though some legislators who may want to be re-elected, make a name for themselves or get news media attention have been “using” the chronic pain community for their own gains. One example of politics mixing with medicine is the “Lifeboat tax”. A group of Senators want patients who are taking Opioids, to pay for addiction treatments centers by forcing a tax of .01 cent per milligram of Opioids prescribed daily. But the majority of people who are legitimately prescribed Opioids are not “addicted”. This is wrong and someone has to take a stand, be brave and help those who truly cannot always fight for themselves. Living with untreated and under-treated chronic pain is definitely a human rights issue because people can and do die from it! They pass away because increased amounts of pain can cause very high blood pressure, high glucose level, stroke and a heart attack. But it’s the “living” without pain relief that is the torturous part.

Honestly, removing Opioids from the bigger picture of high pain illnesses, is inhumane. I hope this Human Rights Watch group will help the chronic pain community, curb the fear in our physicians and stop the Government from creeping into our patient/Dr. Relationship and exam room. This group found that nobody has been paying attention to those suffering because their physicians “jumped ship” and abandoned them. They found that the testimonies given by some patients who have lost access to appropriate medications for pain relief, “were similar to those who were victims of police torture”( https://www.painnewsnetwork.org/stories/2018/3/15/human-rights-watch-investigating-treatment-of-pain-patients. We needed someone to be brave and step up to help our community.

If you want to help the chronic pain community and/or if you have a story of your own, please write to this group? Share your story in just a few lines. They have asked for people to send these stories to: Human Rights Watch, email researcher Laura Mills at millsl@hrw.org…They also have a Facebook page: https://www.facebook.com/HumanRightsWatch and they have a Twitter feed @HumanRightsWatch. The more true stories about increased pain and loss of treatment that can be sent to them, the better. The more real human faces that they can connect with this Cause, the more it will help to stop the continued torture of Americans who rely on Opioid therapy for relief of chronic pain Illnesses.

11 thoughts on “Human Rights Group Addresses Opioid Issue

  1. I left some words to my fight and how I am being tortured again or made to suffer in Pain, thanks to Maine Government, and the Medical world who sold us out, just dropped me and no longer will treat me with more than 100mg, when I was needing to use on average these dosages I will list. I will give my rare best day and up with dosages I used to a fairly common day at the highest dosage that I will list: for a 24hr period- 270mg, 300mg 330mg, 510mg, 540mg, 570mg. There were the times I would have my worst kinds of days and would go higher than 570mg. Highest ever used in 24 hour period 935mg. I have mever had one measly problem from 27 years of using Morphine Medicine daily. Because I have always used it responsibly. Don’t drink, don’t smoke, don’t do illegal drugs, don’t sell my Morphine Medicine, don’t give it to people, don’t Doctor shop, don’t use my Medicine in any wrong manner. Morphine Medicine saved my life! I was losing my mind from having been made to suffer daily constant Pain for 10 years and my mind just started going, and NOT that my health was any bit good, but just then to my luck is when they finally started to allow Pain Doctors to treat people like myself for whom nothing was working, but for strong Narcotic Medicines. I spent 10 years going through and trying everything that did not work. My Problem is from a C1-C2 fusion not exactly in place right which is my main problem and that nothing can be done to the fusion. I did have nerves burned, what nerves the Doctor could get to, but all the wire blocked a lot that he specifically wished he could have burned. But all that was done is a list too long to remember. I went to different Hospitals in different States. Saw the best Doctors, and it all came down to Morphine Medicine working and giving me a life. Until the State of Maine Government had this brilliant idea to limit people like myself who have done nothing wrong, nor connected in any way to the drug addicts and don’t even know them, but Maine Government is punishing me for their wrongs. Kind of reminds me of the drunken driver in an 18 wheeler truck who caused all of this, and the trucking company had all the legal system going for them, and not us who were run over. Pretty much how it was- as two of us 18 years old and our two friends killed 19 and 20 years old and none of us doing anything wrong- they just could NOT conceive that it was the 39 year old drunk truck driver who was wrong, even though we had the Police words and records proving we did nothing wrong our age just- yeah anyways I feel the same kind of mentality going on again. It’s like someone who owns and uses a car in Virginia, is having his car taken away, because of people stealing cars in California. Same kind of logic they are using against us as far as I’m concerned and put very lightly. I could use other words too. But this is ridiculous and evil at the same time! Feel like I am in the eastern block in the early 1960’s. I want live, I want to die. All thanks to what they have done, but that may be exactly what this is all about- they want us dead. I mean notice how they help people with Pain who will be dying soon, but people who will only continue to suffer they are again NOT helping us and I believe it is due to the fact they want as many people knocked off in this world as they can.
    This Maine Government who even passed a law that I fought to have passed that was supposedly to be the answer for what they did to people like myself who had already gone down a proper road and also payed dearly for it, the LD-1031 Law that passed and went through real quick, but it seems to be nothing more than a law to lead people to think they fixed things- while they still leave us people suffering and the law they passed the LD-1031 law has done nothing! It is nothing more than a smoke screen to lead normal people to think they’ve fixed it, and nothing more than that. Man these people are sinister, and I’m getting a grip on exactly who they operate for and serve.
    Plus I am seeing Doctors now telling the same lies they use to tell about Morphine Medicine back in the 1980’s when they made me suffer, tortured me for more than ten years and all they told me is a lie, NOT the truth about Morphine Medicine at all! As it does work for long term Pain if a person is using a correct working dosage, and the Morphine Medicine works to ease their Pain in the first place as it does not work for everyone. But on the other hand it does work for many People and that’s a fact, though rarely told anywhere.
    It actually took 2 decades to get to where I felt I had somewhat of a life and was ahead of the Pain, but at that point I missed the boat, and so I just structured things and at least had somewhat of a life and felt well at least they were finally helping me as they were and no complaints. But 13 years pass and they just ruin my life again, and back to suffering! Part of the story that has saved me on this torture, I must leave out, but these people don’t care about us at all. If they did they would not just leave us to suffer and do nothing even though they have caused all of this! Probably like court, fault and guilt means nothing to them!
    I thought they were learning about Severe Chronic Pain finally and for a number of years I thought tis, but I was greatly wrong! I don’t think they have learned anything about Severe Chronic Pain. They still think it is nothing, a Bayer Aspirin ache that happens for us a few days and we’re just not strong and tough like them who deal with Pain.
    I believe there are good Doctors, but they are rare, and the U.S. Government has probably threatened any of them who dared think about helping us. I truly believe this. It’s senseless, a lunacy, and a down right cruel evil!
    I am tired of being treated as less than human, that’s how it feels for me, what they are doing to us! Cruel and Evil is what it is, what they do.
    It has all gone in a circle right back to how it use to be, same lies are being told about Morphine Medicine, and we suffer torturous daily constant Pain for nothing. Due to the fact that the people of this system want us to suffer, for if they did not want us to suffer- they would NOT be doing this to us and based on nothing to do with us!
    They also allowed someone while breaking the law to freely do this to me, can I do it to them? OH NO NOT AT ALL, THAT IS AGAINST THE LAW, AND THEY ARE IMPORTANT PEOPLE WHO MATTER!

    Like

    1. My story is the same as everybody else’s, I was stable on my pain medication and then all the sudden they started taking it away. This was done against my will. I’m not a drug addict I never abused my medication one time in 8 years. In fact opioids save my life after I tried drinking my pain away, I become a straight-up alcoholic gained about 200 pounds, by the time I finally went to the doctor I was almost dead. Five foot seven, 400 lb sleep apnea, diabetes, high cholesterol/blood pressure you name it I had it. After I started taking an opioid pain medication, I had no desire to drink, it took me awhile to figure out what to do to get back into shape, but with the pain medication I could get out of bed and do things. So I started slow. Fast forward eight years I now weigh 225 lb, no sleep apnea, high blood pressure/cholesterol, my last A1c was 4.9. I was looking for a part-time job and had signed up to Mentor are at risk youth at church. when the CDC guidelines came out my doctor told me he was going to have to taper me from 350 mg a day to 90 mg a day. I told him people were going to die, fast forward two years later he still doesn’t get it, I know why now because they’re lying to the doctors, I asked him if he knew that the CDC had come out and admitted they over estimated RX opioid related deaths by 50%. He was unaware of this, I knew that would be the case and had a copy of that information to give him. Anyway as the rest of us I was happy as I could be with intractable nerve pain, a bone-on-bone arthritis shoulder with to tears, a leg bone that had been detached from my foot bone, chronic intestinal problems. Now these people in their idiocies have put me right back in my deathbed 90% of the time. This is been a pathetic display of ignorance. That’s what happens when you let addiction specialists, PROP along with Dr Kolostomy bag a psychiatrist right opioid prescribing guidelines for pain patients. Best wishes to all

      Like

  2. I sustained a Spinal Cord injury while transferring a patient . I was born with a Tethered Spinal Cord ,which wasn’t discovered ,till 2 yrs after the injury as it was missed on the MRI’s. The Tethered Spinal Cord exacerbated the injuries to my neck , shoulder , Thoracic and Lumbar . I had surgery to release the Spinal Cord and a Laminectomy . I have been diagnosed with Tethered Spinal Cord Syndrome , Chronic Pain Syndrome and more… I have been through countless hrs of physical Therapy and about every treatment and procedure there is including injections and stimulators . I still live in pain everyday from the injuries and i have OsteoArthritis in my Spine and both knees which are bone on bone. I was injured at Work so i have to deal with Workers Comp rules requiring weaning off Opioids and the CDC guidelines. Insurance company’s paid off IME Dr , recommended weaning off Opioids , take me off Lyrica and try Neurontin, Eliminated Ibuprofen, Halcion and cyclobenzaprine . take my medicine for pain. I have never got high on it. I have always been compliant with pain contracts. I am not a drug seeker. I am tired of being treated worse than a drug addict. People in pain take it as directed. I have no quality of life . This is not living, it’s slowly dying . I pray that i won’t wake up one day .At least the pain will be gone. I was told i have 5 brain Aneurysms and had surgery on 3.last March. 2 of them are inoperable. I can’t take much more. Thankyou for your help ! You have no idea how much it is appreciated by the pain community !

    Liked by 1 person

  3. I to am a chronic pain patient with many issues, cervical spine fusion, fybro, arthitis, total hip replacement, degenertive disc disease and have tried everything that was an option to be rid of the horrible pain I live in everyday, and like others follow my doctors instructions when taking my medicines. I was on enough medication a few years ago to lead as much of a productive life as possible for being disabled, and then the cdc guidelines were written! My doctor immediately lowerd me to the 90mme dosage leaving me struggle with withdrawels till my body adapted to the new dosage and basically with very little pain control to even make it worth the out of pocket expenses each month with pee test, and pill counts, not to mention travel there and back on a moments notice for pill counts. I receive a small disability check each month, and trying to make ends meet, dealing with pain is becoming almost impossible. I use to be able to do a few side jobs that enabled me a few extra dollars to allow me a dinner out but because of the new dosage being to low, I’ve lost more then just my medicine. This has got to end, it’s torture knowing there’s medicine that gives me life but not being allowed to have it, is also called mental abuse in addition to torture ! I hope this human rights group is able to straighten this mess out, allow our doctors to be doctors and treat their patirnts as a human being should be treated and not a one size fits all mentality because someone without a doctors medical degree tells you what your allowed and not allowed to do !
    I don’t want to live anymore, I have no life, if they continue on this path of human torture by denying us pain medications that allow us to live, why bother ! Death is painless !

    Like

  4. Thank you Susan, I love you! You are an inspiration to us all. I’ll definitely be telling my story to the Human Rights group.

    Like

  5. Thank you for writing this. Every month as I take the two hour ride to my pain management appointment I am afraid that this will be the month that my medication will be taken. My pain conditions are life long and time has made them worse. I haven’t been able to walk since 2015, and two months ago I broke two ribs sucking too hard on a straw. I take my pain medication as prescribed and have worked many years to develop a relationship with my doctor. I trust her to manage my pain.

    Liked by 1 person

  6. I have 5 bulging discs with nerve involvement, sacroiliac joint dysfunction, and fibromyalgia. I am allergic to NSAIDS. I hurt 24 / 7. The new regulations are hurting the patients with chronic pain and who have been carefully monitored by their Dr’s. My medication has been lowered and my ability to perform my daily activities has as well. I have been told to prepare for not having any pain medication at all. This will increase the pain to the point that I will be unable to do daily tasks and it will place an extra burden on my family. I have tried other venues, chiropractor, cortisone shots, epideral etc. None have had any positive affect. They are trying not to do surgery and, at this point, I would not want to due to the regulations on medication that can help following surgery. I feel like the regulations set tends to throw the baby out with the bathwater in that, by trying to go after and stop illicit drug use, chronic pain sufferers, that are following all Dr’s orders, are being hurt and will suffer in an inhumane way. This is like putting the wrong person in jail. I watched my mom hurt for months prior to having a total knee replacement, and then following surgery as well. Prior to surgery my mom was told to take Tylenol . Following surgery the dr has doled out pain meds with an eyedropper. My mom is 72. Due to the pain her blood pressure increased and she had further issues with her blood sugar. People respond to pain differently and respond to medications differently. This should not be a one size fits all agenda. This is about treating people with medicine that is available. By telling a chronic pain sufferer that the medicine is available, but you can’t have it, now go home and suffer, is what a third world country might di, but not America. Go after the drug dealers, get fentenyl and heroin off the streets. Put the makers of these drugs in jail, but don’t hurt the people doing the right things in the process.

    Liked by 1 person

  7. That’s right, WE are not drug addicts. That’s why I wrote this piece, to let people know about this human rights group. To let people know that someone is finally listening to the plea of the chronic pain patients.

    Like

  8. I am not a drug addict! I was in a horrific car accident that left me with cervical spine injuries. I have tried several treatments and next is surgery. The pain Meds take the edge off so I can at least get up out of bed and get dressed and try and live my life. With out then I am stuck in bed.

    Like

Comments are closed.