America’s Chronic Pain Community Being “Used as Study Subjects”?

What you are about to read will truly surprise you; or maybe not? As you may know, Lauren DeLuca, President and Founder of CIAAG (Chronic Illness Advocacy and Awareness Group)  & Shasta Harner, Director of CIAAG; have been In Washington DC this week.  They are in our nations capital working tirelessly for the chronic pain community. While others including Jayne Flanders, C0-founder & Vice President, Andrew Auell, Director of Research, Peggy O’Connor, Legal analyst have been working “behind the scenes” on social network, writing, making phone calls to legislators etc.  The information that Lauren and Shasta have unraveled is very interesting and may or may not surprise you.  Read on…..

As  you know, we are in the middle of an Under-treated and Untreated Pain crisis and that is what the “Opioid crisis” truly is all about.  The efforts of the CDC, FDA and addiction specialists etc., to reduce opioid prescribing in the USA, has resulted in only a rise in overdoses and suicides. Prescribing of these medications for the treatment of chronic pain and high pain chronic illnesses is at the lowest point it has been in 25 years. Yet the overdose rate has increased because the addicts will find a way to get what they want and need even through illegal and drastic measures. They are getting illicit/illegal fentanyl and carafentanyl from China and Mexico and they are overdosing.  The suicide rate has gone up because the pain community is being tortured and persons with one or multiple High pain illnesses, are being left to suffer endless pain and ultimately torture.

How did this happen?  Lauren and Shasta have come to a conclusion about this while they’ve been doing lots of research and attending meetings in D.C. Their findings indicate this:  “that the CDC guidlines are actually part of a massive population-based study- a clinical trial if you will- that has been implemented into the national healthcare delivery system without the consent or knowledge of the American citizens impacted.  In review of the CDC guidelines’ execution, our organization has discovered what appear to be serious conflicrs of interest, potential financial incentives between parties intimately involved in the study, privacy, as well as of the constitutional, legal, ethical and moral rights of the citizenry.  Please send inquiries to or by phone at (774) 262–6671.”

Lastly, I have a CALL TO ACTION for the Pain Community: “Please Register (it is free to become a member) to beome a member of CIAAG. Next, if you would please show your support by mentioning CIAAG on your Twitter profile to show that you are a member. Please take this proposal and the info that CIAAG has found and disseminate it out into the community to your physicians, politicians, pharmacists, insurers, caretakers, family and friends; along with your state Dept.’s of Health.

****Just a reminder there are many flyers that are free to download from the CIAAG website ( .  You are welcomed to please download this information and also disseminate all of that information into the community as well.  Thank you so much to everyone who has done so much to fight for the rights of the chronically ill, disabled and those who live with high impact chronic pain on a daily basis. If you would like to help a bit more, please remember to use the #CIAAGstrong





5 thoughts on “America’s Chronic Pain Community Being “Used as Study Subjects”?

  1. ….only the names have changed! New & improved biased rulemakers replacing the old. Financial Funding Foundation(s) and Government corruption. Agency lies and false statistic’s. Diversions Ih believed the Suboxone ‘for pain’ LIE. I Stopped high dose opiate therapy. Stable pain control single woman, intensive foster care parent, homeowner. Prevented pain from my spine fused without surgery & other Autoimmunes. No overdose incidents or dr shopping. I now developed
    non bodkins lymphoma. chemo 2 years. No pain control sacrum Tangled in nerves. The slow and painful slaughter of the weak, and ill. A Cruel experiment- I 100% DO agree!

    Liked by 1 person

  2. I am a 53 year-old female and was injured working as a nurse. Long story short, I have a nerve root disorder. I’ve been on medication for 10 years now plus. I am still in pain but it is not as bad and I can function. Now I’m at a pain management clinic. The desire is that I am off of all my opiates in 6 weeks. They reduced my opiates so fast that I have been in withdrawal, I have never been a drug addict, I am not able to do normal activities, and I am on five different other medications just to treat withdrawals. I am miserable and I am angry. What can I do? I live in Missouri


    1. You need to give that pain Dr of yours a copy of the newly changed CDC Guidelines… they’re saying this is wrong!! Visit “People In Pain Unite” a public facebook page with copies of everything you need! Good luck!


    2. Is it you desire to be off opioids or someone else’s? It has been my experience that this nerve pain sometimes come back unexpectedly. what will you you do then? What is the cause of your nerve pain? I really don’t know enough about what medicines you are taking to transition off the opiates. If it is an SSRI it could be one of those drugs. Many people cannot take drugs like Cymbalta. Pain management doctors say that SRI drugs can relieve pain but they just made my condition worse.

      Liked by 1 person

  3. If my pain medicine were suddenly taken away I would be deathly sick. How do I know? I had a set of ablations done and had one of my meds tapered. After 30 days it was as though the devil had a hold on my scrotum pulling me into Hell. I would do one of two things. 1. find a heroin dealer and check it for fentanyl with a test kid or 2. Take my own life.
    It is a binary question. what would you do? How bad is your pain?

    Liked by 2 people

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