A Sad New Existence


I have never been either a Republican or a Democrat.  I vote based on knowledge and who I feel will do their best job for the people of this formerly free country, the USA. You can disagree with me after reading this post. You can choose to never read another one of my articles.  But I’m not mean, selfish, unkind or cruel to anyone, so there is no reason to treat me that way either. I’d like you to just hear me out, since I’m not a “finatic” of either viewpoint. But feel free to just keep scrolling if you don’t like what I’m about to write.

Our President, imho, has done his best from very early on, to save human lives. He stopped travel from China at the end of January, 10 days after the first diagnosed case in the USA. He did this while Nancy Pelosi was Encouraging people to go to Chinatown events in CA on 2-24-20. The radical Democrats were involved in their deep commitment to undo the 2016 election results and they were impeaching the President as he was still working for our Country and trying to keep us safe.  They were impeaching him for a phone call in which the witnesses (who were actually present) and the party on the other end of the telephone call, insisted there was no QPQ.  Every witness who was actually present, corroberrated the fact that there was no Quid Pro Quo involved.

I have never been one to write or chat about politics, especially on my Social media accounts. It’s a “no win” situation because everyone has the right to their opinion. By the way, having the right to voice your own opinion is starting to slip away from us in the USA these days. I’m tired of being silent. But as I start to come out and stand by by own beliefs and try to stand up for what I strongly believe to be true, I’m being verbally abused if I dare speak out against these draconian rules in all but a handful of states.  While they feel free to voice their opinions, they attempt to deny me the right to discuss mine. I never mind having kind and civil discussions.  But if you call me “stupid” or let your “Facebook buddies” call me “ignorant” and/or worse, then I am going to be blocking you. I’m losing my Facebook friends, long time social media buddies, because I dare voice my opinion with data to back it up.

But why should I be surprised? I was a very outspoken and strong advocate for the pain community for many years, from 2008-2018/19.  But since I had an auditory/brain tumor removed surgically, this past Summer 2019; people are “unfriending” me because I’m of no use to them any longer. I have had several commendations (since 2008), for helping others who live with High Impact Chronic Pain due to several various illnesses.  I was awarded a “Special Tribute” from the Governor of Michigan in 2017, along with the U.S. Pain Ambassador of the year award in February of 2017.  I’ve continued posting updated and reliable information to the High Impact/Chronic Pain and RSD/CRPS communities. I try to still lend my support as I’m able in my own support/info groups. There are a few people who have stood by my side and even offered to help me with my groups.  For them, I am eternally grateful and I am blessed to have them in my Life and/or social media life. Some of them have different opinions about politics; but we have managed to separate that and stay friends. The reason I brought this up, is because it seems that in the past few years, people seem to block, berate, degrade, be rude, act abusively and “run away”  from anyone who does not think or feel the same way as they do.

The USA is my country and I’ve always been proud to be an American. I’ve never been and still am not “Right” or “Left”. I guess you could say I’m “Right to center”.  I have voted for Republicans and Democrats in the past. I’m just really sad and tired of seeing this POTUS berated day after day for 3 years now.  He has actually has a great timeline of actions that have been helping with this COVID-19 crisis, including trying to keep us from a big Depression.  Many citizens are tired of hearing how our President “called this virus a hoax and did nothing until March 2020”.  So I did reseach and here are highlights from the timeline during January-March 2020.(the list is so long & full, I only highlighted January-March 2020 *parts of this list are from the White House website & other parts are actual Tweets from the WHO & CDC etc)

  1.  January 11, 2020:  CDC tweets about Corona related “pneumonia outbreak in China”
  2.  January 14, 2020:  WHO tweets that there is no evidence of human to human transmission
  3. January 17, 2020:  CDC started doing health screenings at 3 airports of travelers from China
  4. January 21, 2020:  the first COVID-19 case in USA for someone who traveled directly from Wuhan
  5. January 23, 2020:  WHO again says no human to human transmission outside of China
  6. January 28, 2020:  CDC states “While CDC considers COVID-19 a serious situation and is taking preparedness measures, the immediate risk in the USA is considered low”
  7.  January 29, 2020:  White House announces Coronavirus Task Force created.  Note:  this is despite the WHO downplaying the threat
  8. January 31, 2020:  President Trump bans travel from China.  The media and multiple Democrats slam his decision calling it racisist and xenophobic.
  9.  February 5, 2020:  President Trump was acquitted (impeachment)
  10.  February 5, 2020:  Chuck Schumer, in a tweet, continues to call POTUS’ travel ban from China “premature”
  11.  February 7, 2020:  White House’s Coronavirus Task force gives press briefing
  12.  February 9, 2020:  White House Coronavirus Task Force meets with all Governors
  13.  February 12, 2020:  CDC waiting for approval from Chinese for CDC team to travel to China
  14.  February 18, 2020:  HHS announces partnership to develop a vaccine
  15.  February 21, 2020:  Italy identifies its very first case of COVID-19 in their country
  16.  February 21, 2020:  CDC tweets that it is working with states for preparedness
  17.  February 24, 2020:  POTUS sent letter to Congress asking for $2.5 Billion for virus effort
  18.  February 24, 2020:  Nancy Pelosi was touring San Francisco’s Chinatown to “quell Coronavirus fears”.  She encouraged peopl to “please come and visit and enjoy Chinatown”.
  19.  February 25, 2020:  there is still no reported community spread in the USA (per CDC tweet)
  20.  February 27, 2020:  first community transmission in the USA
  21.  February 27, 2020:  President Trump appoints VP Pence to coordinate efforts
  22.  February 29, 2020:  FIRST reported Coronavirus death in USA
  23.  February 29, 2020:  The Trump administration:  A)  announced a level 4 travel advisory to areas of Italy and S. Korea,  B)  Barred all travel to Iran.  C)  Barred the entry of foreign citizens who visited Iran in the last 14 days.
  24.  March 3, 2020:  The CDC lifted federal restrictions on coronavirus testing to allow any American to be tested for coronavirus, “subject to Dr.’s orders”
  25.   March 3, 2020:  The White House announced President Trump donatated his fourth quarter salary to fight the coronavirus
  26.   March 4, 2020:  A) The Trump administration announced the purchase of approx. 500 million N95 respirators over the next 18 months to respond to the outbreak of the novel coronavirus.  B)  Sec. Azar announced that HHS was transferring $36 million to the CDC to help state and local communities that have been impacted most by the coronavirus.
  27.  March 6, 2020:  President Trump signed an $83 billion bill to fight the COVID-19 outbreak ($7.76 billion to federal, state & local agencies to combat the COVID-19 and authorizes an additional %500 million in waivers for Medicare telehealth restrictions).
  28.  March 9, 2020:  POTUS called on Congress to pass a payroll tax cut over coronavirus
  29.  March 10, 2020:  President Trump and VP Pence met with top health insurance companies and secured a commitment to waive co-pays for COVID-19 testing
  30.  March 11, 2020:  President Trump:  A)  announced travel restrictions on foreigners who had visited Europe in the las 14 days  B)  Directed the Small Business Administration to issue low-interest loans to affected smal business and called on congress to increase this fund by $50 billion  C)  Direccted the Treasury Dept. to defer tax payments for affected individuals & businesses , & provide $200 billion in “additional liquidity”.
  31.  March 13, 2020:  President Trump announced:  A)  public-private parnerships to open up drive-through collection sites.  B)  a pause on interest payments on federal student loans.  C)  An order to the Dept. of Energy to purchase oil for the strategc petroleum reserve
  32.  March 14 2020:  POTUS announced the European travel ban will exten to UK and Ireland
  33.  March 15, 2020:  Google announced a partnership with the Trump admin. to develop a website dedicated to coronavirus education, prevention and local resources
  34.  March 15, 2020:  all 50 states were contacted through FEMA to coordinate “federally-supported, state-led efforts” to end coronavirus
  35.  March 16, 2020:  POTUS A) hele a tel-conference with Governors to discuss preparedness and response to COVID-19  B)  POTUS participated in call with G7 leaders  C) POTUS announced the 1st potential vaccine for COVID-19 has entered phase I trial in record time  D) POTUS announces “15 days to slow the spread”
  36.  March 17, 2020:  POTUS announced:  A) CMS to expand benefits for Medicare beneficiaries  B) Relevant Health Ins. Portability & Accountability act penalties will not be enforced  C)  The Army Corps of Engineers is on “standby” to assist federal & state governments
  37.  March 17, 2020:  POTUS spoke to fast food executives  from Wendy’s, McDonald’s & Burger King to discus drive-thru serves recommended by CDC
  38.  March 17, 2020: the treasury dept:  contributed $10 mllion to Federal Reserve’s commercial paper funding facility and deferred $300 billion in tax payments for 90 days without penalty, up to $1 million for individual and $10 million for business
  39.  March 18, 2020:  POTUS signed the Families First Coronavirus Response Act, which provides free testing and pain sick leave for workers impacted by COVID-19
  40. March 18, 2020:  President Trump announced:  A) temp. closure of the USA/Canada border to non-essential traffic  B) Plans to invoke the Defense Production Act  C) FEMA has been activated in every region at its highest level of response D)  The US Navy will deploy USNS Comfort and USNS Mercy hospital ships.  E)  All foreclosures & evictions will be suspended for a time **Also HHS temp suspended a rgulation that prevents Dr.’s from practicing across state lines.
  41.   March 19, 2020:  POTUS announced very encouraging progress shown by anti-marlaria drug Hydroxychoroquine for fighting coronavirus
  42. March 20, 2020:  USA and Mexico mutually agree to restrict nonessential cross-border traffic
  43.  March 20, 2020:  President Trump spoke with Sen. Schumer about Coronavirus response and stimulus measures   B)  he held a call with over 12, 0000 small business owners to discuss relief efforts  and he C)  announced the CDC will invoke Title 42 to provide border patrol with tools to secure the borders
  44. March 21, 2020:  POTUS admin announced HHS placed order for hundres of millions of N95 masks through FEMA
  45.  March 22, 2020:  POTUS made disaster declarations for CA and Washington state and he announced:  A)  Governors will remain in command of Ntl Guard forces & the federal govt. will fund 100% of operations cost and  B)  He directed the federal govt to provide 4 large federal medical stations with 2,000 beds for CA and & 1,000 beds for NY and WA and C) POTUS announced that the USNS Mercy will be deployed in LA
  46.   March 23, 2020:  President Trump signed and executive ordere invoking section 4512 of the Defense Production Act to prohibit the hoarding of vital medical supplies
  47.  March 25, 2020:  President Trump signed a bill reauthorizing the Older Americans Act, which supports senior citizens by providing meals, transportation and other curcial services.
  48.  March 26, 2020: POTUS did vido conference with G20 leaders to discuss global COVID-19 response and the need for countries to share information and data and POTUS also had a call with Chinese President Xi Jinping to discus coronavirus
  49.  March 27, 2020:  President Trump signs the CARES Act in law  (*Coronavirus Aid, Relief, and Economic Security Act)
  50.  March 29, 2020:  POTUS met with supply chain distributors including Fed Ex, and UPS and others to discus getting medical supplies to state and local govt.’s
  51.  March 30, 2020:  President Trump announced the Federal Govt. will be delivering:  400 ventilators to Michigan, 300 to New Jersey, 150 to Louisiana, 150 to Illinois & 50 to Connecticut and POTUS also pledged $100 million of medical supplies to aid Italy’s battle against COVID-19
  52. March 31, 2020:  A)  POTUS announced the Treasury Dept. & SBA rapidly mobilizing money from the CARES Acts $349 bilion paycheck protection program, with the program set to be “up & running by April 3, 2020. B)  He also Spoke to Michigan’s Governor Whitmer about the states need for ventilators C)  POTUS instructed the Army Corps of Engineers and FEMA to construct several hospitals and alternative care facilities

It is helpful to look at the actual timeline.  All of this started to happen before the first death linked to COVID19 https://www.nbcnews.com/news/amp/ncna1189286 in the USA.  I got most of the information from the CDC tweets, so anyone can look it up to check for accuracy. There are so many other actions in between but I just took some of the highlights & ended mine at March 31 2020. The first several actions that I’ve listed through 2/29/20, were copied from a friend.  But you can take a look at the entire list here at:  List of all of the things that President Donald Trump has done to help combat the novel coronavirus

As I mentioned above, I’m not a Democrat or a Republican. I base my choices on facts (not hated, fear or other emotions) that I gather from watching and listening to all sides.  But honestly, many people have never given our President a chance.

Lastly, I have been & I am following the rules. I am also praying that someone can save us from something far worse than this virus. There are some things worse to lose than our lives. Losing our liberties, our freedoms and the freedoms for our children & grandchildren is something we need to protect. It was just fine to shut down for a few weeks, but not a few months or longer! Anyone who is afraid to go out, should feel free to stay in the safe, solitary confinement of their homes. Protect the elderly, the sick and the most vulnerable (meaning nursing & other homes for the sick). But we should have a choice, because this is the USA! Last time I checked, we were and are still a free country! When they (Dr Fauci, Kolodny & CDC) took pain meds from the chronic pain community in or around 2016 (with the new CDC guidelines), they removed the freedoms from the physicians & patients to decide what is best for their personal pain illnesses. At that time & ever since; the pain community has tried to fight back. I know this because I’m a part of that pain community.

Now we need to work hard at getting our freedoms back! I didn’t mind staying in my home for a few weeks-(2 months) or wearing a mask for a little while to help stop the virus! But there will be many more viruses to come! I don’t want to stay indoors separated from not only society but family; or wear a mask forever! It causes me anxiety and inability to not only breathe freely- BUT I AM DEAF!! I can’t even communicate with anyone who doesn’t know ASL when you’re all wearing masks!! It also takes away my ability to lipread & try to piece together what you might be saying.

C’mon- we don’t stop flying in airplanes or driving cars because of the possibility of a crash!! Road traffic crashes are a leading cause of death in the United States for people aged 1–54 The CDC website on Death from car accidents 2019

Hell, I survived a catastrophic car accident in 2002! I’m still here after 11 surgeries, lots of high impact chronic pain, a pacemaker (x2), a heart attack and a stroke! Let’s live our best life while we are here! Protect the freedoms for our families! We cannot roll over now! Please read a variety of news articles and watch a variety of News shows! You won’t get the truth from just one!! Put all of the information you receive together and make your own informed decision. If your decision is to wear a mask forever, live in your house and get take-out; then by all means, stay home & stay inside! But if I want to go out, let me make that choice! Don’t allow that to be the choice of our Governors or even the President (*except for a short time during an emergency)!!

Lastly, I’m not being selfish! I’m saying please stay inside if you are afraid or vulnerable. But let it be our choice and not an Executive order from a judge, Governor, President or any radical person with a gavel!

Stop The Insanity: The Case Regarding Dr. Kline, M.D.


A woman on Twitter, made a formal complaint against Dr Thomas Kline, MD. He’s a licensed medical physician who treats many chronic pain patients. He has been a courageous & outspoken advocate for the pain community. His Tweets are based on facts & backed up with research. He voluntarily gave up his DEA license because he’s suddenly being investigated for Tweeting that 99.5% of people who are prescribed opioids , do not become addicted! How does a Dr. become under investigation for stating a fact? One that has proof from research??!!

This is insane! How can a random person on Twitter go and make a formal complaint against a Dr . they’ve never known? A physician whose services they’ve never sought out or ever used? ? No one she knows has gone to him & no one has ever been hurt by him!!
His information is NOT emotional, but based on facts and professional research! Her complaint is an EMOTIONAL one!! Yes, with all due respect, it’s sad that she lost her son to HEROIN overdose! But what in the world does a Heroin addiction & his death, got to do with easing the suffering for millions of high impact chronic pain patients?
She’s looking for someone to blame! Her son had a Heroin addiction (an illness of its own) we know that for sure. Maybe he had a genetic predisposition to addiction? But just maybe she’s wants to blame someone else for her sons actions or someone’s inactions? Our Dr Kline is a pillar of ethics and knowledge in the pain community).
Can everyone please get it straight?? Opioids that are prescribed for legitimate high amounts of daily chronic pain, have only about 1-3% to do with addiction!
Someone respectfully tell Ms. Joy, that hurting and “killing” innocent people (who live with horrible A.S., Cancer, RSD/CRPS, Pancreatitis & so many other horribly painful illnesses) will not bring back her son!

The facts are these:

1: Suboxone has horrible side effects (Opioids have very little)! You can’t have an emergency surgery while taking Suboxone because it blocks the anesthetic! It takes about 2 weeks to get out of your system! Maybe this woman wants a traumatic surgery without anesthesia? But most sane people do not want that! You cannot stop taking Suboxone by weaning off slowly (as you can with opioids)! It fights against you with horrific pain and worse effects! I have interviewed people who were given Suboxone inpatient and on it only 6 weeks! It took them more than 6 months to get off if it, and they had horrible & painful side effects from trying to get off of it! Suboxone is a money making scheme! The people involved with the creation, production & distribution of Bupenorphrine/Suboxone, want to rid the world of the “evil” opioids and make Suboxone the only drug for pain! ITS NOT EVEN FOR PAIN!! It’s supposed to be a slightly helpful but weak analgesic for helping those who ARE ADDICTED…& WHO HAVE SOME PAIN!

2) How can a person just make an outrageous claim and the USA government take it seriously & without any proof at all!!??? HOW did this happen?? How did we get here? (I’ll give you 2 reasons starting with “A” & ending with “K”…& also PROPaganda! How does a Dr who is good, kind and cares about the suffering of his patients, get to a point where he surrenders his DEA license that enables him to prescribe some medications treat his patients?? What if “they” decided insulin was addictive to 3% of population? Are they then going to let all Diabetics suffer?

3) Dr Kline uses facts and research and this accuser is someone who I feel is looking to blame someone else! Let’s see what role the others who lived with and around her son had in his life, his addiction & his death, instead of blaming an innocent Dr who is brave and still cares about humanity!

3) most importantly: If someone is taking a pain medication for high amounts of daily high impact & never ending pain, and this medicine (an opioid) helps to enhance this persons life, without any harm to anyone or anything-THAT IS NOT ADDICTION! If a CPP is getting some relief, getting meds on time, taking them as prescribed & they’re given a chance at some semblance of a life (& they are living it), then that medicine should be not only allowed but prescribed absolutely, without any thought of this craziness!

***Go Ahead & Google “FDA-2012-P-0818: It states this:


Some other Articles in this Blog @tearsoftruth.com
A few more Articles within this Blog @tearsoftruth.com
A few more Articles within this Blog @tearsoftruth.com
And lastly, just a few more interesting articles regarding the subject of Opioids, within this Blog

We Are Broken But Strong!


This is for my fellow chronic pain warriors (& me)…fighting the ignorance of those who hold the power to help Cpp’s but they’re pushing massage & other complimentary therapies instead! Opioids clearly help some of the pain community. Let our Drs choose what works best for each individual.

We are in pain & we may be “broken”-but we are worthy, we are strong & we are beautiful! Don’t ever give up! No matter how many people try to put you down or try to “break” you even more!!

Link to “This is Me” (ASL Cover- Greatest Showman)

Link to my YOUTUBE channel & ASL song cover of “Broken & Beautiful” by Kelly Clarkson

Please feel free to follow me on YouTube @ASLSuzyQ for ASL(American Sign Language) song covers & to learn about Deaf History & Deaf culture.

!!https://youtu.be/9iKWKuaAuuM

HERE ARE SOME LINKS TO MORE OF MY ASL SONG COVERS ABOUT OUR JOURNEYS WITH ALL DIFFERENT KINDS OF PAIN-BUT BEING STRONG THROUGH IT ALL!

1) “This is Me” (from Greatest Showman)

2) “Speechless” (from Aladdin)

Speechless from Aladdin

3) “Overcomer” from Mandisa

Overcomer by Mandisa

4) “Fight Song” by Rachel Platten

“Fight Song” by Rachel Platten

5). “We All Bleed The Same” by Mandisa

We All Bleed The Same by Mandisa

The final song for this post, is more about how the chronic pain community feels about going into the new year 2020! We don’t know what’s going to happen to us! But we cannot give up fighting for what we need to live some semblance of a life!

6) “Into the Unknown” from Frozen 2 by Idina Mendel/Aurora

Into the Unknown by Idina Mendel & Aurora from Frozen2

There are many more ASL cover songs for when you need to feel strong! Don’t ever give up!

*Please feel free to read a small part of my story in the paragraphs beneath each video

No Pain Act


If you are a person living with high impact or intractable pain, this is going to affect you greatly.

Please read the article below and see what our government wants to do with persons after surgery. Also how they want to treat the chronic pain population! This is ludicrous and it’s full of horrible lies! What needs to happen before someone in power, with an intelligent mind, helps us?

This is terrible!!! Bad for all CPP’s https://www.congress.gov/bill/116th-congress/house-bill/5172/text?r=1&s=1&fbclid=IwAR3w6u9IAsALdca5cBvWJRXrzucDwbYi4vmhWdYv-Gexyj5R2HRWjk0mNMs

Accessibility A Legal Right


Hey Everyone!

This is a great article from Rikki Poynter and it hits home with me, too! Many of my friends who live with either Deafness/Hearing loss &/or disabilities requiring the use of wheelchair,walker or cane etc, may feel a connection to the stress that Rikki Poynter shares in this article.

Some of us are feeling also the stress of not have accessibility to proper medical care for our high impact chronic pain illnesses. This has been constant since the CDC Guidelines were implemented in 2016, without any pain physicians present at the discussions.

I wanted to share this article because I can feel for her experience and so many people don’t “get it”. Here’s the article: http://www.rikkipoynter.com/articles/event-accessibility

For information or questions regarding the ADA or “Americans With Disabilities Act”, please visit: Link to the ADA website

You can follow Rikki Poynter at Twitter, Instagram and Youtube at: https://www.youtube.com/user/rikkipoynter

And on Twitter:
Rikki Poynter on Twitter
(Check out Rikki Poynter on Twitter: I’m deaf and disabled and, you know, stuff. YouTuber & Public Speaker | #NoMoreCRAPtions | PATREON: https://t.co/BsMiMuxDF5 | rikkipoynter@gmail.com)

Link to Rikki Poynter on Instagram

Just a Photo of me with my purple glitter aids

Me with my family in town, on a Summer day

PEASE FEEL FREE TO FOLLOW ME ON SOCIAL MEDIA:
TWITTER:
1) http://www.twitter.com/ASLSuzyQ
2) http://www.twitter.com/ppl_inpainunite
3) http://www.twitter.com/RASEforCRPS
4) http://www.twitter.com/DeafNDizzy
FACEBOOK:
1) http://www.facebook.com/ASLSuzyQ
2) http://www.facebook.com/RASEforCRPS
3)
http://www.facebook.com/peopleinpainunite
TIKTOK:
1) http://www.tiktok.com/asl_suzyq
*(2nd account is: http://www.tiktok.com/asl_suzyq2
INSTAGRAM: http://www.instagram.com/ASLSuzyQ
TUMBLR: http://www.tumblr.com/ASLSuzyQ
MY BLOG: “Tears of Truth”: @tearsoftruth.com or http://www.wordpress.com/tearsoftruth
SNAPCHAT: http://www.Snapchat.com/jewelrymkr ( or Jewelrymkr )

Testimony From A Pain Patient, Re: Suboxone And Bupenorphrine


This is an email that I received from a chronic pain patient, Chuck Malinowski. He wanted to let me know about his experience with Suboxone/Bupenorphrine. He asked me to share it, after he had read my 2-3 articles about these harsh drugs that are being forced upon chronic pain patients at this time. The side effects from these partial opioid agonists, are much worse than our average opioids. While their analgesic effects are very low. They don’t do much in lowering the high impact pain that many people with long term, painful chronic illnesses live with. They have, however been proven to take the edge off of some lower pain illnesses in drug addicts who have to take it bcz they are unable to take “regular” opioids. The data suggests that it only really helps a little bit with addicts who need a bit of pain relief.

All of my research is backed up and linked to articles and research. Some is straight from the manufacturer of Suboxone/Bupenorphrine:

1) Regarding Bupenorphrine & Suboxone

3) About Suboxone, Bupenorphrine & Naloxone

4). More About Suboxone & Bupenorphrine

Here are some links to more articles where I researched information and came to these conclusions:

*************************************

(*This is where I got some of this information):

1. https://www..com/suboxone-creators-shocking-scheme-to-profit-off-of-heroin-addicts

2. https://www.drugs.com/suboxone.html

Articles that Explain The Bad effects of suboxone, bupenorphrine etc.

1.  Why Suboxone Treatment Can Be Harmful

2. The Suboxone Conspiracy

3. the ugly truth about suboxone withdrawals

***Below is an article straight from a patient:

Here is one Testimonial:

“Absolutely do not let your doctor put you on buprenorphine.
DO. NOT. DO. IT.
Unless it is an absolute life-threatening medical emergency, do not ever allow anyone to put you on either buprenorphine or Suboxone, which is a medication made with buprenorphine and even worse, and much more expensive.
Buprenorphine causes such a severe, and rapid physical dependency that after only using a comparatively small dosage, 16mg per day, for a single month it will take you a minimum of four, but probably five or six months of absolute hell to get off of.
This is not a medical opinion, or medical advice, this is the reality of what I am now living with, and have been for more than 10 weeks.
I was put on buprenorphine when my implanted pain pump ran out of morphine sulfate and I went into severe acute opiate withdrawal.
It was basically an emergency situation, the level of medication for my pain pump was the oral equivalent of 160mg of morphine a day, it was severe opiate withdrawal.
I did not have an addiction to opiates because this was intrathecal morphine – intrathecal delivery is when the medication is delivered in liquid form directly into your spinal column – but my body had a tremendous physical dependency.
Even so, I seriously regret being put on buprenorphine even if it was on emergency basis.
I was on 16mg of buprenorphine per day for five weeks after getting out of the hospital following treatment for severe acute opiate withdrawal.
The treatment was being put on Suboxone, later changed to just straight buprenorphine.
Within three weeks I started experiencing severe migraine headaches, ear aches, severe abdominal pains, diarrhea, severe sleep disturbances in the form of horrific nightmares – nightmares so bad I was afraid to go to sleep.
I also experienced drastic changes in body temperature, one minute I felt like I was roasting alive, the next minute I felt like I was freezing, sometimes I felt both at the same time.
I have been trying to get off of buprenorphine for 10 1/2 weeks now. I have been using every trick in the book to manage the horrible withdrawal symptoms. Herbal supplements, herbal teas, detox supplements, vitamins, OTC medications, etc.
And the withdrawal symptoms are truly horrible, even when simply reducing your dosage by 25%. It’s just as hard to cut your dosage from 5 mg a day to 4 mg a day as it is to cut your dosage from 16mg a day to 12mg a day.
This means that the closer you get to 0mg a day the harder it is to reduce your dosage, because you have to keep doing it by a relatively small percentage, 20 or 25% day over a period of two or three weeks.
It is so bad it gets to a point where you have to cut from 2mg per day, to 1mg per day – if you can even tolerate that big a cut at that point – to 1/2 mg per day, to 1/4 mg per day, to 1/8 of a milligram per day – and, according to my doctor, it can take weeks to do it. It took me 3 1/2 weeks of working at reducing my dosage from 6mg a day to 4mg a day before I could tolerate 4mg a day. It was extremely difficult, and painful every step of the way, and even so, I am suffering horribly.
Today is day number seven at 4mg a day. The last week has been unimaginably horrible – the entire process is unimaginably horrible – today is horrible, and I expect that I will feel like this for another week or two before I am stable at 4mg a day. 
Once I am stable – comfortable – at 4 mg a day I can try to start cutting my dosage to 3mg a day, and the entire nightmare process described below starts all over again, although in truth it never really stops it only gets less horrible, until you try and make your next dosage reduction.
At times feeling like I am burning alive, I feel like I am on fire inside and out. I frequently feel like somebody has put some horrible mind-bending drugs in my drinking water. Uncontrollable shakes and tremors. Uncontrollable whole body spasms were every muscle in my body suddenly goes completely rigid. Diarrhea. Severe sleep disturbances from absolutely horrible nightmares – my neuropsychologist tells me that nightmares are very common with buprenorphine. And you only have the nightmares if you’re lucky enough to be able to sleep in the first place. Or if you can even stay asleep because you’re going through such drastic changes in body temperature that you are frequently waking up and turning the fan on, or turning the fan off, or getting rid of the blanket, or pulling the blanket back on. 
Or, if you try and reduce your dosage a little too much, a little too quickly you wake up drenched in sweat with your clothes soaked through.
If you try and reduce your dosage a little too much, a little too quickly all of the above mentioned withdrawal symptoms are magnified several times over and it literally becomes a living hell. It can be as bad as full-blown acute opiate withdrawal from a high level of opiates. These are both things that I have lived through, so I know this from personal experience. 
Simply trying to get off of buprenorphine by slowly reducing my dosage over the last 10 1/2 weeks at a time has unquestionably been the single most difficult, painful and horrific experience of my life, aside from more than 10 years of Reflex Sympathetic Dystrophy.
I have advanced Reflex Sympathetic Dystrophy, also known as Chronic Regional Pain Syndrome. RSD/CRPS – as well as Trigeminal Neuralgia – has been called the most painful condition there is, it is also sometimes referred to as  ‘The Suicide Disease,” so when I say that getting off of buprenorphine is the most horrible and painful thing I have ever experienced that really means something.
I’ve already I’ve been weaning myself off buprenorphine for 10 1/2 weeks and I still have another 12 or 16 weeks to go – if I’m lucky. It may take even longer. And from what I have read, even once I have stopped taking buprenorphine completely, I can expect another month or two of significant withdrawal symptoms in the form of depression, anxiety, lethargy etc.
It is my personal opinion, based on more than 15 weeks of personal experience of being on buprenorphine, and 10 1/2 indescribably horrible weeks of trying to get off of buprenorphine, that this is a horrible medication, and for a chronic pain patient to use it as an alternative to opiates is a horrible mistake.
It is my personal opinion, based on personal experience, that putting chronic pain patients on either buprenorphine or Suboxone and telling them that it is a safe and effective alternative to opiates is a horrible scam.
It is my personal opinion, based on personal experience, that putting chronic pain patients on either buprenorphine or Suboxone and telling them that it is a safe and effective alternative to opiates is not only medically irresponsible, it is an outright lie.
Getting off of 40mg of hydrocodone per day after six months took two weeks and was no more unpleasant than a mild case of the flu.
With buprenorphine, it took 3 1/2 weeks to simply reduce my dosage from 6mg a day to 4mg a day and it was freaking horrible. I am still having extremely unpleasant withdrawal symptoms after being on 4mg a day for a week, and I expect this will continue for at least another week before I am stable.
STAY. THE. HELL. AWAY. FROM. BUPRENORPHINE.

Chuck Malinowski

******************

Cholesteatoma, Deafness And ASL


Have you always wanted to learn American Sign Language, but didn’t know where to start?

Well, the best place to learn all of the rules, parameters and the full language, is from a certified, Deaf ASL professor. You should do that if you are able to at all. You should also try to find a Deaf community to hang out with and go to Deaf events. Most of the communities are so amazing and we welcome all levels of ASL. We are excited for you to learn and happy to help. If you want to do that, but you don’t have the money or the venue to take those special classes; the next best place to start, is by heading over to YouTube.

There are several great places online where you can get started learning for no cost. Lifeprint.com is just one example, Handspeak.com is another, but first I wanted to let you know that I do have some “ASL Basics- Vocabulary” lessons at my YouTube channel :

My YouTube Channel @ASLSuzyQ

The important thing is that you don’t just learn vocabulary, although that’s a great place to start. You need to learn about the language, culture, community and its history! I do have several videos that are a little bit about each of these things. I have one video about “How to get a Sign Name”. There are other videos that include “Deaf President Now” movement in the 1980’s. Also the Sign Language community that was living in Martha’s Vinyard, Massachusetts; in the early 18th century until 1952.

I’ve been using ASL since I was 11 years old. I was babysitting and hung out with a Deaf family of 6. I grew up mildly Hard of Hearing due to recurrent ear infections and numerous ruptured ear drums with scarring. I always had to sit in the front of the class because I couldn’t hear well. Later, when my elementary school performed hearing tests, they informed my parents that I needed tubes in my ears because I wasn’t hearing well. I had multiple operations from ages 7 through 12 or 13 years. However, I did not get hearing aids until much later.

I went to Deaf school events, such football games at MSD (Michigan school for Deaf). I fit right in and felt comfortable. I later went to college and a group of 16 Deaf students in the dorms, were my best friends. We watched “General Hospital” with closed captioned. We went dancing and had some great times together!

Later on, I took a break for a year and a half & went to work at a school in Arizona with Deaf preschoolers. I loved that job. I was ecstatic to find out that I’d beaten out several other candidates for that position because of my skills. I also worked at a Deaf relay center called ADARA or “Arizona Deaf Assistance Referral Association” while I was living in Scottsdale.

After working there for about a year and a half, I went back home to finish my degree in Sign language studies & Interpreting. I then got hired as an educational interpreter for a school district and stayed on Interpreting for my Alma Mater. I got married, had two daughters and 8 years later I became a single mom.

I needed to take care of my girls and I immediately got a full time job with full benefits at the University hospital. I was a “Secretarial float” & wore a pager so that I could be notified when Deaf clients/patients needed me to Interpret for them. I loved my job. At that same time, I was an Interpreter at a school district nearby. I also volunteered as a pro tactile interpreter for Deaf/Blind medical screening events a few times each year.

I continued attending workshops at my Alma Mater and one in particular stands out in my memory. I met an amazingly intelligent and kind man who impacted the rest of my life, in a good way! His name is Art Roehrig and he was a Deaf/Blind guest speaker at one of my most memorable workshops. He told stories about how he’d grown up at a residential Deaf school and discovered that he had Ushers Syndrome, when he was a teen. He shared jokes and told us all about how he was living independently. He was a public speaking and later worked at and then retired from Gallaudet University. I still email with my long time friend, Art.

Back in 2002, I was involved in an Catastrophic car accident. A man ran through a red light and I suffered multiple injuries, surgeries and a Traumatic brain injury. I went through 11 surgeries up until now, and 3 years of TBI (brain injury) rehabilitation. I am left with many medical issues, including several high pain chronic illnesses, chronic pain, a stroke, heart attack and I received a permanent dual chamber pacemaker. Since the car accident, I’ve had vision issues, such as “halo vision” and a Convergence Insufficiency. Also, due to the TBI, my hearing declined even more. Prisms were placed in my eyeglasses for quite awhile and I was fitted with two hearing aids for mild.

My hearing declined over the years and the past 4-5 years it was rapidly declining more. I was waiting until my husband retired this past year, to be fitted with new hearing aids. They’re so expensive ($6,000.00), so I had to wait until we got new insurance, that would help with the cost.

When I went for the hearing test, they were concerned because my bilateral hearing loss had very much worsened. The right side was also now a mixed hearing loss and not only sensory-neural. The ENT ordered a CT scan & later in May 2019, I was diagnosed with an auditory tumor, called a Cholesteatoma. I had a very scary & difficult brain/inner ear surgery on July 26, 2019. I got two new & improved digital hearing aids. But they’ve been nothing but trouble with one thing or another since I got them! We had to pay $1,500.00 of the cost plus $150.00 for the ear molds (which now both have split on me and I’ve only had them for a few months). I’m ready to give up on them.

My hearing bones, eardrum & Mastoid were all diseased from the tumor. I received a Tympanoplasty, a Mastoidectomy (called a Tympanomastoidectomy) & a titanium Anvil, a prosthetic ear-bone. I’ve had Vertigo, a tingling, droopy top, right lip & my tongue has no sensation or taste on the right side, since that surgery this Summer. Oh… and I’m Deaf in my right ear and Moderate/severe HoH in my left ear. The deafness isn’t my problem. The fact that I have to live a lifelong battle with a reoccurring tumor, (that’s like a cancer in the way that it grows into the brain & can kill you. Also in the way it can repeatedly grow back); that is my problem! I have to go back in Spring 2020, for another of the same surgery, possibly. The micro Neuro-Otologist surgeon, told me “to be prepared”. This thing is the “Never ending story”. An endless battle that results in multiple painful & scary surgeries and deafness. But as I said, deafness is not the problem. I’ve been part of the Deaf community since age 11. It’s the lifelong battle with more pain & surgeries on top of the current pain…..that is the major issue for me.

If you’d like to follow me in social media, I will leave the links for you, below:

1) http://www.instagram.com/ASLSuzyQ

2) http://www.facebook.com/ASLSuzyQ

3) http://www.twitter.com//ASLSuzyQ

4) http://www.youtube.com/ASLSuzyQ

5) http://www.tiktok.com/asl_suzyq

6) http://www.facebook.com/groups/ASLExpress (*This one is an ASL info, & help group)

My new Hearing aids: