A Letter To RFK (Human Rights) Foundation


RFK Human Rights Group: Watch Video

Hello Luvs,

I was sent a video about the RFK, Human Rights Group. It’s led by Kerry Kennedy, daughter of the late Robert Kennedy. She is an attorney and she now leads this human rights group: RFK Human Rights group website

Immediately, I drafted a letter to her and sent it. Below, I have copied/pasted the exact letter that I sent to Ms. Kennedy. Something must change! The “Opioid Hysteria Crisis” is one of the worst nightmares I’ve witnessed &/or experienced. Watching a large group of approximately 26 million (out of the 100 million people living with chronic pain) human beings, systematically tortured to death has been horrendous. To be a witness to this despicable, willful & planned money making scheme, is nauseating to say the least! I’ve watched as the innocent chronically ill people in our pain community die and continue to die on a weekly basis. Maybe I will be next? So I pray that doesn’t happen and that I keep fighting.

I have been a very active advocate/activist in fighting for the rights of people in the chronic pain community. I have led the fight as far back as 2007, in spreading awareness, doing fundraisers, leading several online support groups & then being certified & leading “in-person” chronic pain support groups as well. I’m certified in pediatric RSD/CRPS, as well as being the Social media assistant for RSDSA. I’m a freelance writer with a blog (this one, @tearsoftruth.com) that has been nominated twice for “Best In show- blog by WEGO Health Awards. I was invited by IDA ( Invisible disabilities Association) to do & ultimately did a featured video on their “Invisible No More” YouTube channel. In 2016,’17 & ’18, I had 42 articles published. I was one of the many advocates/Drs/nurses etc., who helped edit & sign the letter to Brandeis University, demanding that Andrew Kolodny be fired for his leading role in the torture & deaths of multiple chronic pain patients (due to forced tapering & the 2016 CDC Guidelines).

Lastly, I was awarded the “US Pain Ambassador of the Year Award” in 2016. Afterwards, I was asked to be on the USPF Board of Directors (*a volunteer position which I accepted & later resigned after only 8 months. If you want to read more about that, visit: Why I resigned from the US Pain Foundation).

There’s more, but you get the idea. Sadly, since last Summer, 2018, I had my LA/ER pain medication forcibly & quickly tapered between July 22 –September 1st, 2018. I’d been doing reasonably well on a stable dose for 14 years. Since then I can often be found in my “Lazy boy” type of recliner, approximately 16 hours per day. I continue to do my best with my online support groups and I continue to fight for us via my blog/writing, support groups, mentoring for RSDSA, Social media Support for RSDSA & Deaf/HoH communications Director for CIAAG. I try to support everyone and stay out of any drama. I’m doing all that I can do at this point in time.

This is inhumane and torturous for the USA to be treating their citizens this way! Someone please help us!

Here’s the letter that I wrote to the Human Rights Watch group, run by Kerry Kennedy:

Dear Ms. Kennedy 

I’m writing to you today because I know that you help people who’ve had their human rights violated. I represent only one out of 100 million people in the chronic pain community. Out of that number, there are an estimated 26 million of us who urgently need your help.  Many people in the United States of America are  dealing with horrific pain on a daily basis.  I stand along with them  & implore you to help put an end to the violation of human rights that is taking place. 

The CDC, DEA and “Big Brother” Pharma companies are “hurting” the American chronic pain Community. We are losing access to medically necessary medications that enable us to live some semblance of a life. 

We are and have been losing access to our pain relieving medications since the implementation of 2016 CDC Guidelines.  We are  being “lumped together” with illicit drug users and addicts. Every time a celebrity dies of an overdose, they blame the pain meds as the cause of death. But really it’s the misuse and abuse of pain medications along with the use of recreational street drugs. 

A Dr. should not be afraid to prescribe Opioid pain medications to their patients because of repercussions from the CDC or DEA. But our pain Physicians are leaving in droves because of them & the 2016 CDC Guidelines. 

The  “Opioid epidemic” is about illegal/illicit fentanyl brought here from Mexico & China. It’s not about us, the 100 million chronic pain patients in the USA. Only 1% of legitimate chronic pain patients who are legitimately prescribed opioids, for high amounts of pain, ever become addicted. It’s as though our country is now torturing and punishing people for being ill.

Ms. Kennedy, we are not addicts and we are not “addicted”.  A person can be “dependent” on a medication and not be addicted! They are two very different situations. We are not addicted to our medications and we do not get cravings nor do we get “high” from them. An addict seeks out their “drug of choice” at any cost.  They look forward to taking them because of the “high” they get. A legitimate chronic pain patient who’s done well for years on a stable dose of opioid pain medication, doesn’t get any sort of “high”.  We also take our medications responsibly.  We get some relief and reprieve from the daily chronic pain that we live with. 

Please help us get back the physician / patient relationship, without interference from Pharmacy’s, insurers, the government and politics.  Please help us to keep our Drs in charge. It should be the decision between patient/physician to choose what is necessary and best for our pain control. They went to medical school and the government did not.

Many pain management Dr’s are leaving the practices they’ve built and the profession they’ve worked hard at, to achieve. They’re  afraid because they are being wrongly targeted by the DEA . They aren’t free to prescribe medications that help to relieve pain anymore. 

People in the USA in 2019 are being tortured and hurt by this on a daily basis. Just yesterday, I read the story of a 94-year-old woman who shattered her kneecap and was taken to the hospital emergency room. They immobilized her knee and sent her home without any pain control at all. Can you even imagine shattering your kneecap and not getting any thing to help with a torturous pain like that?
Ms. Kennedy, please help us? I understand there are people who die from overdoses. But they are a totally separate group of people who need a different kind of help. It shouldn’t be at the expense of an entire separate community of citizens. People In pain are being taken off of their Opioid pain medication during one visit to the Dr’s office. Often it’s a Dr. that they’ve gone to for years and they’d been living some semblance of a life while on a regimen of medication for pain control. But because of “fear”, Dr’s are taking away the little bit of life that some of us have left. 

I also don’t believe that anyone should be FORCED to have an invasive surgery in their spine or anywhere for that matter; when an inexpensive & safe pill, with little side effects can help so much. 

I implore you to help the estimated 26 million chronic pain patients in the USA, who are “dependent” on opioids for pain control & who are diligent and take these medications responsibly. Help us to get back the freedom of choice. Get us back to the pain management medication regimens that are life sustaining for us with more tolerable pain levels.

Please read my letter and talk to me if you’d like. We need you to understand that we are “chronic pain patients” and not “addicts”! We are just real people living with unfortunate circumstances & high pain illnesses. Please help us to receive the medications that give us some semblance of a life for ourselves & our families.

Sincerely,

Suzanne B. Stewart
Recipient of U.S. Pain Ambassador of the Year Award‘16, Mentor & Social Media Coordinator @RSDSA, freelance writer, Blogger/Blog “Tears Of Truth” @tearsoftruth.com, Patient leader WEGO Health, HoH/ASL, Director of communications for Deaf/HoH for CIAAG, patient advocate for Deaf/HoH
“Out of suffering have emerged the strongest souls; the most massive characters are seared with scars” ~Khalil Gibran~
DISCLAIMER: The contentI is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We do not recommend the self-management of health problems. We can not and do not give you medical advice. The information in this e mail should not be considered complete. Information obtained in this e mail is not exhaustive and does not cover all diseases, ailments, physical conditions or their treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read in this e mail. If you think you may have a medical emergency, call your doctor or 911 immediately. I do not represent to be an authority but I’m just helping pass information from other organizations, advocates and or websites.

Frontal lobotomy for the relief of intractable pain • CERGM


Hello Luvs,

Ohh My Goodness!!! Has our society gone completely mad now? These “sickos” may be taking us back in time to a period when people were given a Frontal lobotomy for the relief of intractable pain!! This is absolutely crazy, when a safe pill, called an “opioid” can help our chronic intractable pain patients. Who in their right mind would choose a frontal lobotomy over a safe an effective pill? The opioids that are getting a bad rap from anti-opioid zealots (read more about them, here: Anti-Opioid Zealots ), are not hurting the legitimate chronic pain patients. People who’ve been prescribed opioids for years, (a decade or even more) & have done well; are NOT addicted! Only about 1% of true chronic pain patients actually ever become “addicted” (Writer Josh Bloom, gives you statistics here: The Opioid Epidemic in 6 Charts, Designed to Deceive You ). It’s not prescription opioids that are the problem! It’s the illegal fentanyl from China & Mexico that are hurting, addicting & killing people! Addiction and dependence are two very different situations. You can find out more information about that here: Addiction & Dependence Are Not The Same

Who are the bad actors? Government, Healthcare or Patients? • CERGM
— Read on cergm.carter-brothers.com/2019/03/28/frontal-lobotomy-for-the-relief-of-intractable-pain/

The Nightmares of Pain Refugees


Hello Luvs,

I was deeply touched by 2 stories that I’m about to share with you! I’d like to personally say “thank you” to Sheri Owen & Maria Higgenbothem. They are the 1st and then the 2nd chronic pain patients in the video below. I want to thank them for their bravery and their candidness.

Sheri had a level-7, spinal fusion and did not receive any pain care in the hospital after her surgery; outside of the normal regimen that she’s been on for years at home.

Secondly, we have Maria Higinbotham, who went on “Nightly news with Lester Holt and Kate Snow. What’s happening to the Chronic Pain community is torturous and wrong! It’s inhumane and I would’ve never thought this would be happening in the United States of America in 2019. It’s almost like the old practice of eugenics. As if they want us to be gone? So that we’re not a burden on society anymore? This is so morally wrong! Please go to http://www.Videoyourpain.com.

Share your pain story with our legislators, politicians, government, doctors, and pharmacists. Let’s share these painful stories with the world and command that this torture be stopped!

I’ve put the two videos together for your convenience and to CC for the Deaf and Hard of Hearing communities/audiences.

Also, I’d like to add that there are several advocates & groups who trying so hard to do all that they can to help the pain community! I thank you all from the bottom of my heart.

Here’s the link to the original “Nightly News” piece on NBC. (Lastly, there are two news media outlets that are listening to us. Fox News and NBC now have their ears and attention turned to the pain community. Let’s tell them everything that’s happening. Talk to Lester Holt, Kate Snow at NBC & Greg Gutfeld at Fox News. Go to Twitter and find them by putting their name in the search bar. Talk to them! Tell everyone you’re story of under treated and/or untreated pain. They are now listening and we need their help and their voices!

I’d like to say a special “thank you” to David Weiland for posting the video in CIAAG Facebook group.

Here’s the Link to the Facebook Page for “Nightly News” with Lester- NBC Holt

This is the “Chronic Illness & Awareness Advocacy Group (CIAAG) and Non-Profit .org 501(c)(3), Founded & run by Lauren DeLuca & Jayne Flanders: Here’s the link to “CIAAG” Chronic illness awareness and advocacy group on Facebook

Here is the online link to the CIAAG website at www.ciaag.net

Here also are the links to listen to Dr Kline, MD, at Jonelle Elgaway’s Show on Conspiracies Against Wellness Network (CAW): You Tube page for CAW

Here are the links to the C-50 states group page run by Valorie Hawk: Link to Coalition of State Leaders Group C-50

Please everyone try your best to come together and let’s fix this problem! Because it’s a huge problem, a national emergency and a humanitarian crisis.

Here are two more links to a couple of great videos about #1: several pain patients stories of torture: The Link to “Fight for Our Lives”, a short Video that I made regarding this opioid hysteria & untreated pain crisis and #2 is a video about Suboxone. Link to my video, ”Pain, Politics & Suboxone” (It’s a good drug if you’re an addict but has a very low analgesic effect on chronic pain. Not a good choice for persons living with chronic pain illnesses)

Thank you for reading and please share!

9 Pieces of ‘Health Advice’ It’s OK To Ignore if you Have Chronic Illness


Hello Luvs,

Well, I’m sure that you all have those friends &/or that family member who always has “advice” for your chronic illness? Don’t you just want to make them feel how you feel for about 30 minutes, at times? Let them feel the pain and suffer as you do, just for awhile? Better yet, don’t tell them that it’s only for 30 minutes! Let them think they’ll feel that way forever; for life! No end in sight just like you(us) and no cure! What if they thought they had to live with it forever? Do you think they’d be changed?

I get so tired of people giving advice, when they have absolutely no idea what it’s like to look pretty much “fine” on the outside; while feeling so much pain & fatigue.

9 Pieces of ‘Health Advice’ It’s OK to Ignore If You Have a Chronic Illness https://themighty.com/2018/12/bad-health-advice-chronic-illness/

Are Imposters Preying On Unsuspecting Patients In Our Pain Community Again?


Hello Luvs

Once again I’m so sorry to be giving the news regarding the possibility of imposters (or at the very least, these are persons who don’t have the best interest of our pain community in their hearts) infiltrating our pain community. Last I wrote about this subject, was a month ago, inside of several groups, to warn them! It was regarding the notorious “Kate Ashworth” aka “fake RSD/CRPS guru”(see article link below). She was back again; hurting unknowing chronic pain patients! Those affected, just happened to be persons who also live with the unbearable pain of RSD/CRPS. (To find out more about RSD/CRPS, please visit: For Real Facts & Information About RSD/CRPS, follow this link to RSDSA Home Page (Reflex Sympathetic Dystrophy Syndrome Association)

*(To Read the article about the imposter,“Kate Ashworth”,who recently came back a second time & infiltrated the RSD/CRPS community; visit this link: This is the Link to the article about Kate Ashworth, an Imposter to the Chronic Pain Community) “Strangers Among Us”

On Tuesday night 3-6-29; I saw a message from a long time RSD/CRPS friend on Facebook. I saw the message very late in middle of the night and it was written by Mary Mattio, in a “closed & secret” Facebook support Group for RSD/CRPS. Posting with permission, this is what I read at approximately 11:30 pm:

I’ll show you everything that was written underneath. But first I want to say “thank you” to Mary Mattio for posting about this to the Facebook group, . When digging deeper, I’d like to say “thank you” also to Tracey Tipton-Morales & Marisa Gravett for their “detective work”, involvement and postings. But we need to all give a special thanks to Sarah Lesley, for being the first to figure out all of this mess which I’m going to try to explain. So thank you to everyone who’s been involved in getting the word out, sharing, reporting and blocking these alleged fakes.(I have to say “alleged” but I believe it is true, with my whole heart!)

This was the full post shared from Sarah Lesley & Marisa Gravett:

⚠️ ATTENTION CHRONIC PAIN COMMUNITY⚠️

* Shared from Sarah Lesley & Marisa Gravett *

Okay CRPS Community: If you are in the group “RSD/CRPS and Neuropathic Pain Syndrome” beware… This was brought to my attention this morning. One of the admins actually works for a treatment center that focuses on getting pain patients to stop talking about their pain, basically making it seem like it’s all in our heads. I just saw a YouTube video shared in a post on that page this morning of him doing a presentation about his research and recovery centers and how it focuses on getting pain patients to stop focusing on their pain and to be able to return to be active members of society again. Basically making it sound like we don’t really need medical care, treatment etc…

I am infuriated at some of the things that I have seen and found out. We believe that many of the admins are either fake or using fake names and or involved in depth with Dr. Rand and his treatment centers as one of his treatment centers is referred to as the Bay Area and the last name of many of the admins is Bay…

Think of this as a conspiracy theory if you wish but I have just seen with my own eyes a YouTube video by Dr. Rand speaking about these treatment centers and it is very clear that this group and possibly other groups that we may all be involved in with similar admins, maybe using the information that we give against us as research, or to turn it in to help with their research or so-called research.

It is clear that this group is not created to help others. Many of the members I am sure do their best to help many people in this group to share information to ask questions and I do not blame or think any of the members are involved except for the ones that are listed as admins.

If you are in this group you are advised to check it out for yourself and if you feel the same way to delete the posts that you have in that page as well as get out of it. Also I would advise all of us to take a better look at who the admins are in many of our groups if we do not know or have never checked it out. We need to do all we can to look out for ourselves and our fellow CRPS Warriors and if there is any chance that this group is not on the up-and-up or could be using our information for any purpose other than to help each other live a life with this horrendous evil monster of a disease, I want no part of it and I do not want any of you to as well.

I was originally going to tag everybody in the post within the group that I’m friends with but there are so many of you I ran out of room on a piece of paper writing your names. I’ll be tagging as many as it will allow. Please if you are a CRPS Warrior check out this group check out the information for yourself and be careful out there.

I urge you all to please report all the fake profiles & all the groups that the fake profiles created & are Admins of, it’s the only way we can get them shut down. This post is now public, please feel free to share. Marisa Gravett has additional information on this as well.

Look up Jerrod Rand on YouTube if you want to see for yourself. Be careful out their Warriors. We are finding way too many wolves in sheeps clothing within our community.

** BELOW ARE SCREENSHOTS OF THE ADMINS & A FEW OF THE GROUPS & PAGES THAT ARE LINKED TO THEM **

**BEFORE I REPORTED & BLOCKED THIS “JERROLD RAND” facebook account (whether someone is using his name, or it is truly this person; we don’t know yet?)- I FOUND THIS POST VERY INTERESTING & TELLING OF PROBLEMS ON/WITH THAT PAGE:

I wanted to add that we all need to be vigilant, but we cannot allow ourselves to overreact or get too upset over this. Though it is very upsetting, our main goal is to stay calm and get the “word out” to the RSD/CRPS & Pain Communities. If everyone who reads this can go and report each of these groups and the 5 accounts that appear to be for the sole purpose of “pushing” these 30 or so “support groups” on unknowing people in pain! If we all can do that, Facebook will be able to shut them down!

Please understand that I’m in no way condemning those who have joined these groups. It’s not their fault. It’s the admins (whoever they truly are??) of those groups who are to blame. They are violating our community and others. Once again, people had recently been asked to send in photos of their Rsd/CRPS affected limbs. People, please don’t send your photos to anyone who asks. If you’re friends with someone who you know & feel comfortable with; and you want to share a photo; go for it! But please, just a bit of advice from my heart: “please don’t send your personal medical photos to anyone who requests them from you”. Also, PLEASE don’t take any medical advice from anyone online. They could be impersonating anyone! Only take therapeutic, medical advice from your own personal medical professionals. The ones who know you and your personal mecical history.

Any questions, please don’t hesitate to ask: Sarah Lesley, Mary Mattio, Marisa Gravett, Tracey Tipton-Morales or you can ask me & I’ll do my best to get the right answers for you.

Please share this public blog post everywhere that you can. We need to look out form& take care of each other! Thank you for your time!

Lastly, here’s a link to a video by Jerrold Rand who seems to be the ringleader:

1: “Dr” J. Rand on Opiate use” at his Youtube channel called “Bay Recovery”

2: “Dr” J. Rand talks about Methadone on his Youtube channel

3: THIS ONE MAY UPSET YOU- if you’re fighting for your life-saving pain medication right now (just forewarning you): “Dr.” J. Rand’s patient talking about chronic pain etc. (On Youtube)

I hope that you will all just take this information and do what’s in your heart. I cannot honestly write here, that I know anything “for sure” about this quack! I’m writing an opinion piece (because we are all allowed to have our own personal feelings and opinions). But my opinion is that this guy and his 30+ Facebook groups, fake admins (possibly?) and several fake accounts, are frauds! I’m just sayin’—–check the one photo screenshot above especially!! The one that shows that his license was revoked in 2012!! Then look at the News story underneath that one! About him self-prescribing sleeping pills etc! Also, it appears from that News piece, that he somehow may have been responsible for a women’s death??

Sorry for the bad news! But I love you all with my whole heart & soul. I feel an inner tug at my heart to protect you in any way possible.

Josh Bloom Exposes Makers of Tylenol


(They’re no better than Kolodny)

The makers of the OTC “medication” (I use the term “medication” very loosely) “Tylenol” are now trying to reap the benefits of the pain caused by Andrew Kolodny & his minions. Touting the idea that Tylenol actually helps post -surgical pain! When in the writing in the back of the box, in minuscule letters; states that Tylenol is actually “for minor aches & pains”! Josh Bloom, the author of the article below, asks the question; Which is it? Is it for the horrible pain after some major surgeries? Or is it for minor aches & pains? They can’t have it both ways! I think you’ll find this article fascinating. After reading the article, please check out the link to another article by a Physician, Dr. Aric Hausknecht MD. He even goes on to explain how dangerous Tylenol can be! Opioids never hurt me in 14 years. They have little or no side effects an if someone is a little bit drowsy, they just need to wait a week for that symptom of a new medication to go away. People can drive While taking opioids! That’s ridiculous !

This is a reprint of an article that was sent to me, with all credits to Josh Bloom This the link to this article in full. Written by Josh Bloom

I’ve also posted it here for your convenience. But please visit the article in its entirety with comments as well. Please go and tell Johnson & Johnson what you think of their plot to fool the ill, disabled & elderly! They are some bad people over at: Tylenol.com headquarters online

Johnson & Johnson’s Shameless Exploitation Of The Opioid Crisis

Related articles

If you’re in the mood to get really pissed off feel free to visit Tylenol.com. But don’t say I didn’t warn you.

Of course, this is just my opinion, but it would seem that Johnson and Johnson is doing a splendid job of trying to boost Tylenol sales by using a none-too-well-concealed attempt to exploit the anti-opioid jihad that continues to run rampant in the U.S., despite overwhelming evidence that war against pain medications has done very little good and very much harm.

1. Johnson and Johnson tries to modernize. And capitalize.

Maybe the company is trying out a new slogan.

Old: 

No More Tears®

New:

“No More Scruples” 

2. Confusing labels.

There are at least three items on the Tylenol website that suggest that J&J is trying to cash in on the opioid crisis, a big no-no in my book. 

Let’s start with some of the language on the label. It not only makes no sense but, in fact, appears to be self-contradictory. Here is part of it:

(Figure 1) Is Tylenol really useful for post-surgical pain? Source:Tylenol.com

I don’t know what parameters J&J used to make the claim that Tylenol is the “#1 Doctor recommended OTC Brand for Post-Surgical Pain Relief.” Because if you look a little more carefully at the rest of label you’ll run into the following (in much smaller letters):

(Figure 2) Translation:  “Use only as directed. For minor aches and pains.” Image: Tylenol.com

3. You can’t have it both ways.

Perhaps you are now asking yourself, “Hmm. if the stuff is meant to be used for minor aches and pains then how can J&J be touting it as the #1 doctor recommended drug for post-surgical pain? Something doesn’t add up here. Post-surgical pain is usually not “minor.” Perhaps the company can explain which of these statements is true. Is Tylenol really so great for post-op pain, such as that from a knee replacement? Or is it more suitable scraped knee?

Based on my own experience with the stuff I’d rather take this. It won’t make me feel any better, but at least it’s yummy!

Have severe pain after surgery? Ask if the hospital pharmacy carries this. Works about as well and Tylenol, but it tastes better.  Image: Candy Warehouse

4. Bottom feeders and the bottom line.

If you click on an innocuous looking button – CLICK HERE FOR DETAILS – it would seem that the company has finally revealed its intentions. 

$hamless. Source. Tylenol.com

Whoa! Why on earth would a company that makes Tylenol put “opioid-free tablets” in the product description? Here’s my best guess. 

That phrase in the red box cannot be there by accident. Since opioid analgesic pills are now (wrongly) equated with “deadly” J&J probably figured that it could score some cheap points by restating the obvious: Tylenol doesn’t contain any opioid; it never did (1). So consumers should feel perfectly comfortable buying a drug that is strong enough for post-surgical pain (No – it barely works for anything. See Note #2) and safe (It’s not so safe either. See Note #3.)

There sure is a lot of double talk in the Tylenol campaign. It sounds vaguely familiar, the use of trickery – half-truths and partial facts to make a point. Where might we have seen something of this nature? Let me think it over for a moment. 

Oh, yeah. It’s this.

Andrew “Pez Head” Kolodny

 

NOTES:

(1) Exception: tylenol-codeine combinations like Tylenol #3, which are prescription drugs.

(2) The following conclusions were taken from Cochrane reviews of the quality of evidence of efficacy of acetaminophen (or the lack thereof) to treat certain conditions. Originally in the article Tylenol Isn’t So Safe, But At Least It Works, Right?

  •  Osteoarthritis of the Knee and Hip – “In conclusion, there is little evidence to support the efficacy of acetaminophen treatment in patients with chronic pain conditions.”
  • Acute and Chronic Lower Back Pain – “We found high-quality evidence that paracetamol (4 g per day) is no better than placebo for relieving acute LBP in either the short or longer term. It also worked no better than placebo on the other aspects studied, such as quality of life and sleep quality.”
  • Back Pain, and Hip and Knee Osteoarthritis – “Paracetamol is ineffective in the treatment of low back pain and provides minimal short term benefit for people with osteoarthritis. These results support the reconsideration of recommendations to use paracetamol for patients with low back pain and osteoarthritis of the hip or knee in clinical practice guidelines.”
  • Headaches – The outcome of being pain free or having only mild pain at two hours was reported by 59 in 100 people taking paracetamol 1000 mg...”  but “[the same result was seen in “49 out of 100 people taking placebo.”
  • Colds  “The data in this review do not provide sufficient evidence to inform practice regarding the use of acetaminophen for the common cold in adults.”
  • Fever – “[Tylenol] and ibuprofen lower the child’s temperature and relieve their discomfort.”

So, the only evidence-based indication for the utility of Tylenol (according to Cochrane reviews) is lowering children’s fever. There is no strong evidence that it works well for anything else, although it does seem to amplify the analgesic ability of ibuprofen, and vice versa. 

(2) Dr. Aric Hauseknect, a neurologist and pain management specialist in New York, makes this quite clear when in a 2017 interview. “Tylenol is by far the most dangerous drug ever made.” See (See Pain In The Time Of Opioid Denial: An Interview With Aric Hausknecht, M.D.)

If you’re in the mood to get really pissed off feel free to visit Tylenol.com. But don’t say I didn’t warn you.

Of course, this is just my opinion, but it would seem that Johnson and Johnson is doing a splendid job of trying to boost Tylenol sales by using a none-too-well-concealed attempt to exploit the anti-opioid jihad that continues to run rampant in the U.S., despite overwhelming evidence that war against pain medications has done very little good and very much harm.

1. Johnson and Johnson tries to modernize. And capitalize.

Maybe the company is trying out a new slogan.

Old: 

No More Tears®

New:

“No More Scruples” 

2. Confusing labels.

There are at least three items on the Tylenol website that suggest that J&J is trying to cash in on the opioid crisis, a big no-no in my book. 

Let’s start with some of the language on the label. It not only makes no sense but, in fact, appears to be self-contradictory. Here is part of it:

(Figure 1) Is Tylenol really useful for post-surgical pain? Source:Tylenol.com

I don’t know what parameters J&J used to make the claim that Tylenol is the “#1 Doctor recommended OTC Brand for Post-Surgical Pain Relief.” Because if you look a little more carefully at the rest of label you’ll run into the following (in much smaller letters):

(Figure 2) Translation:  “Use only as directed. For minor aches and pains.” Image: Tylenol.com

3. You can’t have it both ways.

Perhaps you are now asking yourself, “Hmm. if the stuff is meant to be used for minor aches and pains then how can J&J be touting it as the #1 doctor recommended drug for post-surgical pain? Something doesn’t add up here. Post-surgical pain is usually not “minor.” Perhaps the company can explain which of these statements is true. Is Tylenol really so great for post-op pain, such as that from a knee replacement? Or is it more suitable scraped knee?

Based on my own experience with the stuff I’d rather take this. It won’t make me feel any better, but at least it’s yummy!

Have severe pain after surgery? Ask if the hospital pharmacy carries this. Works about as well and Tylenol, but it tastes better.  Image: Candy Warehouse

4. Bottom feeders and the bottom line.

If you click on an innocuous looking button – CLICK HERE FOR DETAILS – it would seem that the company has finally revealed its intentions. 

$hamless. Source. Tylenol.com

Whoa! Why on earth would a company that makes Tylenol put “opioid-free tablets” in the product description? Here’s my best guess. 

That phrase in the red box cannot be there by accident. Since opioid analgesic pills are now (wrongly) equated with “deadly” J&J probably figured that it could score some cheap points by restating the obvious: Tylenol doesn’t contain any opioid; it never did (1). So consumers should feel perfectly comfortable buying a drug that is strong enough for post-surgical pain (No – it barely works for anything. See Note #2) and safe (It’s not so safe either. See Note #3.)

There sure is a lot of double talk in the Tylenol campaign. It sounds vaguely familiar, the use of trickery – half-truths and partial facts to make a point. Where might we have seen something of this nature? Let me think it over for a moment. 

Oh, yeah. It’s this.

Andrew “Pez Head” Kolodny

 

NOTES:

(1) Exception: tylenol-codeine combinations like Tylenol #3, which are prescription drugs.

(2) The following conclusions were taken from Cochrane reviews of the quality of evidence of efficacy of acetaminophen (or the lack thereof) to treat certain conditions. Originally in the article Tylenol Isn’t So Safe, But At Least It Works, Right?

  •  Osteoarthritis of the Knee and Hip – “In conclusion, there is little evidence to support the efficacy of acetaminophen treatment in patients with chronic pain conditions.”
  • Acute and Chronic Lower Back Pain – “We found high-quality evidence that paracetamol (4 g per day) is no better than placebo for relieving acute LBP in either the short or longer term. It also worked no better than placebo on the other aspects studied, such as quality of life and sleep quality.”
  • Back Pain, and Hip and Knee Osteoarthritis – “Paracetamol is ineffective in the treatment of low back pain and provides minimal short term benefit for people with osteoarthritis. These results support the reconsideration of recommendations to use paracetamol for patients with low back pain and osteoarthritis of the hip or knee in clinical practice guidelines.”
  • Headaches – The outcome of being pain free or having only mild pain at two hours was reported by 59 in 100 people taking paracetamol 1000 mg...”  but “[the same result was seen in “49 out of 100 people taking placebo.”
  • Colds  “The data in this review do not provide sufficient evidence to inform practice regarding the use of acetaminophen for the common cold in adults.”
  • Fever – “[Tylenol] and ibuprofen lower the child’s temperature and relieve their discomfort.”

So, the only evidence-based indication for the utility of Tylenol (according to Cochrane reviews) is lowering children’s fever. There is no strong evidence that it works well for anything else, although it does seem to amplify the analgesic ability of ibuprofen, and vice versa. 

(2) Dr. Aric Hauseknect, a neurologist and pain management specialist in New York, makes this quite clear when in a 2017 interview. “Tylenol is by far the most dangerous drug ever made.” See (See Pain In The Time Of Opioid Denial: An Interview With Aric Hausknecht, M.D.)

 

ASL Learner Mistakes


Hello Luvs,

Here’s a short video that is about some of the most common mistakes that people who are learning ASL- American Sign Language make. I hope you enjoy!

ASL Learner Mistakes https://youtu.be/CHRkPKa5iRU via @YouTube #asl #americansignlanguage #asllearningmistakes #aslmistakes #deafculture #deafcommunity #hh #hoh