Palliative Care


Hello Luvs,

I wanted to share this very important piece of information from another of our leading advocate Physicians, Dr Thomas Kline MD ( on Twitter @ThomasKlineMD). He wrote this article explaining the palliative care “loophole” for getting chronic pain Patients proper care.

Since the 2016 CDC Guidelines have somehow become “law” and set into place in the USA: pain Patients have had a horrible time getting proper pain care. Dr Kline has said that in most all of the 50 states, palliative care patients are exempt from the horrible restrictions for opioid pain medication therapy. In his article posted below, there is a certificate that helps to exempt the chronic pain patients from these opioid treatment restrictions. Of course the form needs to be filled out and signed by a qualified Physician.

Palliative care is defined as: “an interdisciplinary approach to specialized medical and nursing care for people with life-limiting illnesses. It focuses on providing relief from the symptoms, pain, physical stress, and mental stress at any stage of illness”. Wikipedia

Below, I have attached Dr Kline’s article with the palliative care form for you to take to your Dr/Drs.:

medium.com/@ThomasKlineMD/palliative-care-certificate-form-to-accompany-article-when-does-pain-treatment-become-palliative-f5ab526188cb

Becoming Incurable Crowdfunding Campaign


Please watch this short video and see how this film producer is bringing awareness of Chronic pain and Chronic illnesses to the big screen!

If you prefer to visit my advocacy YouTube Channel to watch this, you can visit: WWW.YouTube.Com/Suzydukettes….

BUT my newest Youtube video is right here for you to watch -and it’s only about 4 minutes Long: I hope you will enjoy, learn & help in any way possible with the crowdfunding campaign, at: http://www.seedandspark.com/fund/becomingincurable

Here is a very short 4 minute video: (Thank you for Watching):

Becoming Incurable Crowdfunding Video

Inhumane Treatment Of Pain Patients In USA


I opened up My friends blog today (“Pharmacist Steve”). It is Steve Ariens Blog; and I saw a story of torture. There is torture going on in America! I’m seeing it every day now on the Internet! More & more chronic pain patients are being treated like common criminals! This is despicable! My God, are we living in North Korea, Afghanistan or in some 3rd world country (whos people , by the way; don’t deserve this kind of treatment any more than we don’t!!)?

How can the news media @Foxnews.com, @CNN, @MSNBC and all of the rest, be so one sided? Please, I implore you @POTUS, @GovChristie @PetersforMichigan (Senator Gary Peters), @NYGovCuomo (Governor Andrew Cuomo), @onetoughnerd (Governor Rick Snyder of MI). I implore you to think of the forgotten legitimate chronic pain patients. People are now living with daily chronic pain and receiving no treatment at all. They being totally forgotten & considered collateral damage of this “fake war on drugs” ! It’s a war against the chronic pain community; because they’re the ones who are dying. The pain community is stuck with zero semblance of a life as all of this is crashing down around them/us! The posted video is not just sad, it’s torturous to listen to. It’s terrible to watch. But it’s true and it’s happening all over the United States Of America! This is a story about a young mother, wife and daughter; who’s going through sheer bloody hell in Albany New York Trauma Center!

“Amy” Amy’s story of Human Torture in a NY hospital! is a young woman who just went through a painful stomach surgery and her stomach ruptured as well! The contents are therefore spreading throughout her body inside and this causes not only sepsis, but horrible excruciating pain! My husband went through it years ago, but they gave him a Morphine pump while in the hospital for several days following surgery. He was given pain relief, as any HUMAN BEING or any living, breathing animal should have!!

This is torturous and despicable treatment of anyone in a hospital, or any patient care facility; let alone, following a stomach surgery! How can the Albany Medical Center in Albany, New York, allow their patient to be treated in such an inhumane manner??? The behavior of the nurses who pledge also, to “care for the sick” and to “do no harm”; is unforgivable! This sort of treatment to other human beings deserves termination. Those so called patient care employees need to be fired and they should never be allowed to not care for another patient! This woman, who has a name, a face, a husband & a family; is living through hell!

You know what though? This is entirely preventable! She is not a prisoner of War! This is a young woman who’d much prefer to have a “normal” life! This young woman has a name, and that name is “AMY”! She has a young child and a husband. I’m guessing that her husband had to leave her to go home and take care of their little one! He had to do that and he thought he’d left his wife in the care of a reputable hospital facility!! Obviously, he was mistaken and that’s really sad!

What if Amy was unable to show us this video? What if she was incapacitated and couldn’t tell anyone what’s happening to her? Please share this video and Amy’s story. Write to your legislators and put a name and a face to all of our stories. Nothing can change if we cannot be brave and do something to help ourselves and to help Amy!

Our government leaders, the news media agencies and society need to as many faces and hear as many stories as possible about us! The chronic pain community being left behind and treated as though we are just collateral damage in the war on drugs! This has taken a turn for the worse. It’s gone from a “war” against illicit drugs to a war against the legitimate chronic pain patients. We will lose & continue to lose if not for people being brave like “Amy”.

Please speak out and tell everyone your story and the stories like this one! Get the word out about how chronic pain patients are not drug addicts. We are not addicted at all! Ask them if they can remember a time when they had lived through their worst pain imaginable? Then ask them to think about that pain never ceasing! Tell them this is what it’s like for us, for you!

Please pass this story around. Know that I received Amy’s video & story from Pharmacist Steve Arians Blog, at: PharmacistSteve.com….. It is posted in several places on Facebook. He asked if we could “please make this video go viral”?

Thank you for your help! Please…. let’s all help Amy & all of the other “Amy’s”! Thank you Steve Ariens too!

Becoming Incurable Magazine Feature


Hello Luvs

I’m really excited to share this with you today! The US Pain Foundation has teamed with Victoria Suan, the producer, creator & Director of her Documentary “Becoming Incurable “. I’d written to you about 6 weeks ago regarding the feature film etc. But today I want to share this online magazine that she’s made to compliment the video compilations and her Documentary!

I am the middle of 3 persons being featured in this online magazine. I’m being featured for the illness of CRPS. This is thrilling and just so very exciting to be a part of this beautiful project to spread awareness of chronic pain and illness.

Becoming Incurable magazine feature

How Great Thou Art -ASL


A beautiful song was in my soul today! I went to church and asked if I could use the chapel! So this is “How Great Thou Art” sung by Carrie Underwood! I hope you get chills like I do!

#WhyISign


 

This is my story for # Why I Sign? Campaign at #whyisign on YouTube, Instagram & Facebook. The CC is right there on YouTube and there’s one right on the video in my Instagram too! The link to my story in Instagram is here: Link to my #WhyISign Video withCC on Instagram and then the link to my #WhyISign story on YouTube (which also has CC for the “Sign Language Impaired” **Lol just teasing) is just below this paragraph. Thank you for stopping by to find out my story and the reasons “Why I Sign”!!

Updated “WHY I SIGN?” Video on my YouTube Channel At: @ASLSuzyQ

AND….THATS…. #WHYISIGN ….bye ..Love, Suzy

Please Take 1 Minute


I am excited to announce that I have been nominated for the Wego health “Best in show-Blog” award category in the sixth annual Wego health awards.

Wego helped is a mission driven Company connecting healthcare with the experience, skills, and insight of patient leaders. They are the worlds largest network of patient leaders, working across virtually all health conditions and topics. Click here: to learn more about their patient leader network.

The WEGO Health Awards were created to celebrate those who tirelessly support the mission of Wego health: to empower the patient voice. The 16 award categories, the Wego health awards are the only awards across all conditions and platforms, that recognize the over 100,000 inspiring patient leaders who raise awareness, share information, and support their communities-but often without recognition.

First, I would like to say “thank you” to those who nominated me for this award. I appreciate the time, the kindness in your heart and thoughtfulness that it took to nominate me & this Blog, “Tears of Truth”. To be nominated for this award category “Best in Show-Blog” means so much to me. It means that I am reaching people and they enjoy reading what I write. I truly pray that I am helping people and reaching people who otherwise wouldn’t get some of the information that I offer and share. In being a patient leader I have gotten to work with many wonderful people, made new friends, and have had chances to do research on bio similar medications and other subjects to do with many aspects of various illnesses.

This year, the 16 Wego health award winners will be honored at the 5th annual patient advocacy summit in Washington, DC October 23 and 24th, 2017. I would love to be able to attend this advocacy event and collaborate with the industry leaders. If you’d like more information about the summit you can learn more if you Click here

I am now looking to my incredibly supportive network to help endorse me for this award. There is an easy way to endorse it only takes seconds of your time!  Click here to be taken to my Wego Health awards profile where you can click “Endorse” under my nominee photo.

If I had ever supported you, made you laugh, or inspired you to keep fighting-please consider endorsing me for this award? In advance, I would like to say once more “thank you so much”. Without you I wouldn’t have a popular blog and I wouldn’t be nominated for this honorable award.

@WEGOHealth