Becoming Incurable Crowdfunding Campaign


Please watch this short video and see how this film producer is bringing awareness of Chronic pain and Chronic illnesses to the big screen!

If you prefer to visit my advocacy YouTube Channel to watch this, you can visit: WWW.YouTube.Com/Suzydukettes….

BUT my newest Youtube video is right here for you to watch -and it’s only about 4 minutes Long: I hope you will enjoy, learn & help in any way possible with the crowdfunding campaign, at: http://www.seedandspark.com/fund/becomingincurable

Here is a very short 4 minute video: (Thank you for Watching):

Becoming Incurable Crowdfunding Video

Inhumane Treatment Of Pain Patients In USA


I opened up My friends blog today (“Pharmacist Steve”). It is Steve Ariens Blog; and I saw a story of torture. There is torture going on in America! I’m seeing it every day now on the Internet! More & more chronic pain patients are being treated like common criminals! This is despicable! My God, are we living in North Korea, Afghanistan or in some 3rd world country (whos people , by the way; don’t deserve this kind of treatment any more than we don’t!!)?

How can the news media @Foxnews.com, @CNN, @MSNBC and all of the rest, be so one sided? Please, I implore you @POTUS, @GovChristie @PetersforMichigan (Senator Gary Peters), @NYGovCuomo (Governor Andrew Cuomo), @onetoughnerd (Governor Rick Snyder of MI). I implore you to think of the forgotten legitimate chronic pain patients. People are now living with daily chronic pain and receiving no treatment at all. They being totally forgotten & considered collateral damage of this “fake war on drugs” ! It’s a war against the chronic pain community; because they’re the ones who are dying. The pain community is stuck with zero semblance of a life as all of this is crashing down around them/us! The posted video is not just sad, it’s torturous to listen to. It’s terrible to watch. But it’s true and it’s happening all over the United States Of America! This is a story about a young mother, wife and daughter; who’s going through sheer bloody hell in Albany New York Trauma Center!

“Amy” Amy’s story of Human Torture in a NY hospital! is a young woman who just went through a painful stomach surgery and her stomach ruptured as well! The contents are therefore spreading throughout her body inside and this causes not only sepsis, but horrible excruciating pain! My husband went through it years ago, but they gave him a Morphine pump while in the hospital for several days following surgery. He was given pain relief, as any HUMAN BEING or any living, breathing animal should have!!

This is torturous and despicable treatment of anyone in a hospital, or any patient care facility; let alone, following a stomach surgery! How can the Albany Medical Center in Albany, New York, allow their patient to be treated in such an inhumane manner??? The behavior of the nurses who pledge also, to “care for the sick” and to “do no harm”; is unforgivable! This sort of treatment to other human beings deserves termination. Those so called patient care employees need to be fired and they should never be allowed to not care for another patient! This woman, who has a name, a face, a husband & a family; is living through hell!

You know what though? This is entirely preventable! She is not a prisoner of War! This is a young woman who’d much prefer to have a “normal” life! This young woman has a name, and that name is “AMY”! She has a young child and a husband. I’m guessing that her husband had to leave her to go home and take care of their little one! He had to do that and he thought he’d left his wife in the care of a reputable hospital facility!! Obviously, he was mistaken and that’s really sad!

What if Amy was unable to show us this video? What if she was incapacitated and couldn’t tell anyone what’s happening to her? Please share this video and Amy’s story. Write to your legislators and put a name and a face to all of our stories. Nothing can change if we cannot be brave and do something to help ourselves and to help Amy!

Our government leaders, the news media agencies and society need to as many faces and hear as many stories as possible about us! The chronic pain community being left behind and treated as though we are just collateral damage in the war on drugs! This has taken a turn for the worse. It’s gone from a “war” against illicit drugs to a war against the legitimate chronic pain patients. We will lose & continue to lose if not for people being brave like “Amy”.

Please speak out and tell everyone your story and the stories like this one! Get the word out about how chronic pain patients are not drug addicts. We are not addicted at all! Ask them if they can remember a time when they had lived through their worst pain imaginable? Then ask them to think about that pain never ceasing! Tell them this is what it’s like for us, for you!

Please pass this story around. Know that I received Amy’s video & story from Pharmacist Steve Arians Blog, at: PharmacistSteve.com….. It is posted in several places on Facebook. He asked if we could “please make this video go viral”?

Thank you for your help! Please…. let’s all help Amy & all of the other “Amy’s”! Thank you Steve Ariens too!

Becoming Incurable Magazine Feature


Hello Luvs

I’m really excited to share this with you today! The US Pain Foundation has teamed with Victoria Suan, the producer, creator & Director of her Documentary “Becoming Incurable “. I’d written to you about 6 weeks ago regarding the feature film etc. But today I want to share this online magazine that she’s made to compliment the video compilations and her Documentary!

I am the middle of 3 persons being featured in this online magazine. I’m being featured for the illness of CRPS. This is thrilling and just so very exciting to be a part of this beautiful project to spread awareness of chronic pain and illness.

Becoming Incurable magazine feature

How Great Thou Art -ASL


A beautiful song was in my soul today! I went to church and asked if I could use the chapel! So this is “How Great Thou Art” sung by Carrie Underwood! I hope you get chills like I do!

#WhyISign


This is my story for # Why I Sign? Transcript: Hello,, my name is Suzanne, last name Stewart. #Why I sign? I have a story: I was born Hearing & my family is hearing. I’m the past, I babysat for 6 Deaf kids, children. They lived next door. A Deaf family, full Deaf with 6 Deaf children. One day I was babysitting & something happened. But before that, we were playing games, learning signs for colors, numbers, Fingerspelling, days, months and family signs and different things. One day, one of the little girls, ohh about 9 years old was behaving badly. I said “come here… go to your room and stay there”. She was crying a little bit. She ran out and came to me bawling. She told me something but it went over my head and I understood nothing! I was thinking “hmmm… No, you need to go back to your room and stay there. She ran out to me again bawling, crying so hard. I said to her, “what’s wrong? What’s wrong? What happened? Whaaat? She started to slowly Fingerspell “b-e-e in my r-o-o-m”! Ah haa “Wonderful!!” I finally understood what was wrong! “Ohhh..Poor baby!” I felt awful! …..I said “I’m so sorry, I feel awful!”  I said “please forgive me”? She said it was Ok, she was fine! I became more fascinated in learning ASL/Sign language. I just love it so much! (*No English word exactly for “hand kiss”- but it kinda means I just love it so much” or “it’s my favorite”) … I got books and learned more signs on my own. I went to College and graduated 1985! Then I worked as a hospital Interpreter, a school Interpreter and I worked at a Deaf school in AZ. I flew to Arizona and lived there for 2 years! I worked there and enjoyed it and had so much fun! I missed my family so I went back home.Then in 2002, I was in a very bad car accident. I had so many injuries, it was bad. So many pain problems and 10 surgeries, they kept adding up! My hearing deteriorated! Isn’t it Strange for an Interpreter to get hearing loss? It’s true, I have two hearing aids. But it doesn’t matter,I’m fine. I don’t care. I’m happy and proud! I already know ASL/Sign language! THATS #WHYISIGN ….bye ..Love you!

Click here for video #Whyisign
Made with #VideoShow-https://itunes.apple.com/app/id1112850631

Please Take 1 Minute


I am excited to announce that I have been nominated for the Wego health “Best in show-Blog” award category in the sixth annual Wego health awards.

Wego helped is a mission driven Company connecting healthcare with the experience, skills, and insight of patient leaders. They are the worlds largest network of patient leaders, working across virtually all health conditions and topics. Click here: to learn more about their patient leader network.

The WEGO Health Awards were created to celebrate those who tirelessly support the mission of Wego health: to empower the patient voice. The 16 award categories, the Wego health awards are the only awards across all conditions and platforms, that recognize the over 100,000 inspiring patient leaders who raise awareness, share information, and support their communities-but often without recognition.

First, I would like to say “thank you” to those who nominated me for this award. I appreciate the time, the kindness in your heart and thoughtfulness that it took to nominate me & this Blog, “Tears of Truth”. To be nominated for this award category “Best in Show-Blog” means so much to me. It means that I am reaching people and they enjoy reading what I write. I truly pray that I am helping people and reaching people who otherwise wouldn’t get some of the information that I offer and share. In being a patient leader I have gotten to work with many wonderful people, made new friends, and have had chances to do research on bio similar medications and other subjects to do with many aspects of various illnesses.

This year, the 16 Wego health award winners will be honored at the 5th annual patient advocacy summit in Washington, DC October 23 and 24th, 2017. I would love to be able to attend this advocacy event and collaborate with the industry leaders. If you’d like more information about the summit you can learn more if you Click here

I am now looking to my incredibly supportive network to help endorse me for this award. There is an easy way to endorse it only takes seconds of your time!  Click here to be taken to my Wego Health awards profile where you can click “Endorse” under my nominee photo.

If I had ever supported you, made you laugh, or inspired you to keep fighting-please consider endorsing me for this award? In advance, I would like to say once more “thank you so much”. Without you I wouldn’t have a popular blog and I wouldn’t be nominated for this honorable award.

@WEGOHealth

Hope Is A Verb


img_7869We all lose hope at some point in our lifetime or another. We get sad and start feeling hopeless when too many things happen all at once; that we consider to be “bad”, hurtful or depressing. We may start to feel overwhelmed and this causes some of us to lose hope. Sometimes it is the way we feel inside because of something or some “things” that others have said or done to us or said about us.  Certain words or situations might hurt our feelings or even our ego possibly? The holidays seem to bring about an overabundance of  feelings, situations and even hopelessness. At a time when Charles Dickens’ ghosts would be telling us that we need to learn from our past, live in the present and look forward to our futures. It’s not as easy as it seems. Even the Hallmark Christmas stories, have characters who, by the end of the story, are healthy, happy and hopeful. Those of us living with daily chronic pain are not immune to the difficult, hopeless feeling situations that actually multiply for us during the holidays. You see, we get these feelings on top of  debilitating pain and most often, that brings with it, several illnesses and disabilities.

You might say to yourself, “What is she talking about? Why is she writing such a “downer” as this, during what most see as a happy time of year?” I’ll tell you what I’m talking about. It is this 4 letter word “HOPE”. It can be anything you make it, if you just think about it for a moment. People want “HOPE” to be brought to them. They want it as a “gift” from God. Some others think of it as a noun or a “thing” that we are entitled to. But in my lifetime I have come to love this sometimes mysterious 4 letter word. It intrigues me so much that I wear it on a chain around my neck. I have worn HOPE around my neck for years and years. It is my favorite of all words.  I always thought that I’d get out of a bad situation if I just had “Hope”. Things will get better if I just keep “hoping”.  I always thought that if I continue to wear my “Hope” necklace, then one day I will have “HOPE”; the noun, the “thing” that others seem to have.

But I did not “get” HOPE because you cannot wait for it, for the noun or the “thing” to come to you. I have learned that “HOPE” is a verb. A verb is an “action” word.  I have found that HOPE is also an action word and you have to DO something in order to have and keep HOPE! If you keep waiting for it to come to you, that is when you will lose it. For example; as a chronic pain patient, in order to find a good Dr., one whom you trust and respect; you must continue to look. You can’t sit back and “HOPE” that others will find the Dr. for you. You must do the work of looking, hunting on the internet and reading the different reviews about many many physicians. You might have to do the tedious work of going to 3, 4 or even 5 different Dr’s before you find the right “fit” for you. But after you do the actions, then you can receive the “HOPE”.  It will be rewarding to actively do the “work” or the job of looking for and getting what you want or need for yourself. Along with this comes the feeling of accomplishment and when you put those things together, you will feel more secure, happy and hopeful.  See how it works? If you choose to do nothing, feel sorry for yourself most of the time, and let others do it all for you; then there cannot be much HOPE. If you try your best and keep making the end goal of having and keeping HOPE; making it a verb and doing the actions; I think you will be surprised at how much better you feel inside.I’m not saying that you can never feel sad, loss or grief.  It is OK to feel sad sometimes, as long as you can get yourself back in time, before the loss of hope comes.

I have an example for you, and it just happened to me during these past few weeks.  I was feeling sorry for myself and a bit hopeless. Silly as it seems, I had taken off my “HOPE” necklace and everything just appeared to be a bit bleak. I was experiencing higher pain levels because we live in Michigan and it’s been so very cold. I don’t like going out much or at all during this part of the year because of the higher pain levels along with extreme cold. But I do want to go out, because this is my favorite season of  helping others, HOPEfulness and cheer. I love the lights, the music and the Christmas trees. I usually feel happier even when staying inside with my cat in my warm, cozy chair. I enjoy drinking something hot and watching the overly dramatic Christmas movies. But these past few weeks I had been feeling down and a bit hopeless.  I was feeling that I was trying even when I didn’t feel good enough to try anymore. I continued “doing” when I didn’t feel well enough to do the things that I just wanted to do.  But I was adamant about doing those things anyways. I realized that you must stop and take a time out, when you need one. It’s OK to be sad for awhile, but just when you feel that HOPE is lost, that is when you are keeping it as a noun and something that is given to you. But things will turn around when you remember to keep HOPE as a verb. Keep it as an action word and one in which you have to do something in order to have it. When you make HOPE a verb,something always happens to change the negative feelings in your life.

Just when my HOPE was draining, I received a large envelope in the mail.  Inside was a blue folder with the seal of Michigan on it. When I opened it, I started to cry and I was ecstatic. What I held in my hands was a “Special Tribute” from the Michigan House of Representatives  and from the Governor,  Rick Snyder!  I’ll Post a photo of the “Special Tribute” here so that you can read it. I have been rewarded when I have never asked for any rewards. I received a special tribute for the advocacy work that I do and my “compassion for others”.  I don’t have any idea where it originated?  I know who signed it and sent it to me; but what, how, why me?  All I know is that I was feeling down and tired of constant pain, even though my pain is somewhat controlled. I was losing HOPE because I was waiting for someone to give it to me. I had to remember again, that it is an action of “doing something”. Though I did receive something in the mail that truly cheered up my spirits. In the end, I did something to make it happen.

Don’t lose hope because it’s not something you can “hold or touch”; it’s something that you “DO” or “act upon”. My hero was an Advocate, Helen Keller.  She was blind and Deaf, but she never gave up. She was tenacious and I strive to be like her. Especially in that I’d gone to University to be an Interpreter for the Deaf and blind. I worked at a major Hospital as an Interpreter and at magnet schools for hearing impaired children. Then, in 2002, my car was hit by a man who ran through a red light. I won’t go into the multiple injuries and surgeries. But I will tell you how ironic it was/is that I am fluent in American Sign Language. Deaf culture & ASL have always been something that I love.  As a result of the car accident, I also suffered a “Traumatic Brain Injury”.  Part of that includes hearing loss and vision issues. I have a convergence insufficiency, chronic dry eye, my own hearing aids and prescription eye drops that I must use on a daily basis in order to keep from going blind.

Whenever I feel that I’m losing HOPE, I remember all that I have been through and all that I still CAN do. I try to remember to never stop doing the actions that keep my HOPE alive. Lack of action makes hope die and that is when I remember what my “hero”, Helen Keller, once said: “Your success and happiness lies in you.  Resolve to keep happy, and your joy and you shall form an invincible host against difficulties.”

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