WEGO Health 2018 Awards


I am very excited to inform you that I have been nominated for two WEGO Health Awards in the 2018 WEGO Health Awards season. The two areas in which I’ve been nominated are: “Best In Show Blog” (for this Blog “Tears of Truth”) and also for “Best In Show Facebook” for my many facebook groups:

  • (International CRPS Support group, RASE for CRPS (research,awareness,support and education)
  • Dysautonomia Support Network
  • Michigan/Midwest & friends
  • Chronic Pain Support Group
  • Deaf/Hard of Hearing and Living with Chronic Pain
  • People In Pain Unite
  • ASL Song and ASLSuzyQ (these last two are ASL, or American Sign Language groups).

Also for my Facebook Pages:

  • RASE for CRPS,
  • RASE for Invisible Diseases,
  • Dysautonomia Network,
  • Association for Ethical treatment of Pain Patients (AETOPP),
  • People In Pain Unite,
  • Gone But Not Forgotten Friends and Family
  • ASLSuzyQ)

WEGO Healt is a mission-driven company connecting healthcare with the experience, skills and insights of the patient leaders.  They are the worlds largest network of patient leaders, working across  virtualy all health conditions and topics. click here to learn more about their Patient Leader Network.

The WEGO Health Awards  were created to celebrate those who tirelessly support the mission of WEGO Health to empower the patient voice.  With 16 award categories, the WEGO Health awards are the only awards across all conditions and platforms, that recognize the over 100 thousand inspiring Patient Leaders who raise awareness, share information and support their communities but often without recognition.

I want to thank those who nominated me and thought enough of my advocacy/awareness work to think of me for these awards. It means so much to be nominated because though I don’t do what I do in order to get anything from it; I appreciate being recognized for the work that I do. It means that the work that I do voluntarily to help the several communities that I am involved with, is not going unnoticed. Thank you so much for that.

I feel that I deserve the “Best in Show Blog” award because my blog, ‘Tears of Truth”, has become a large network and a plethora of information for patients who live with various illnesses that especially cause chronic pain. There are many resources and so much information here to address patients with various needs. I feel that I also deserve the “Best in Show Facebook” because I serve several different patient communities who live with chronic pain from various illnesses. I have created 6 chronic pain support groups and 2 ASL groups that support Deaf/Hard of Hearing community (including myself, as I am HoH). I try very hard to work closely with several different non-profits and I do not ask for anything in return. These awards, even just being nominated gives me that feeling of being appreciated.

This year, the 16 WEGO Health Award winners will be honored at an in-person celebration in Octoer, co-hosted by the Society of Participator Medicine at the Connected Health Conference. It is very important to me and I would really love to attentd this event to collaborate with industry leaders. Also, I would truly love to meet all of the people who I’ve been working with and talking with all of these years, since 2010 or so, when I first became a WEGO Patient Leader.

I’m now looking toward YOU, my incredibly supportive network to help endorse me for these two awards.  There are two easy ways to endorse me, (*Wordpress does not allow me to put a badge on this blog. Therefore the link is on the column to the upper right side of this blog (on a computer)…or you can easily choose the method below)….that will only take seconds of  your time, I promise! (I would love to be endorsed in both categories because they are equally important.

If I have ever supported you, made you laugh, given you inspiration  or cheered you on to keep fighting – please consider taking just a few seconds to endorse me for these awards. Thank you in advance, from my heart.

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Respectfully And Humbly Health Advocate Decides Not To Pursue Awards


2019

Hello Luvs,

If you see the pictures on this page you will notice that I was or have been nominated for a few, “WEGO health Activist Awards” this year for 2016. I was really excited to find out this news. I mean, I worked really hard this year and it’s such a “high” to think that someone thought inspired enough about the things that I have been doing all year.  I was nominated for: Best in show: BLOG …for THIS BLOG….now that is pretty cool, right?!  Next up is: Best in show : Instagram, Twitter, Facebook and Pinterest. How fun is this, right?

Well, it might be fun, or it might not? I never mind the hard work part. I love social media, computers, gadgets,  and technology in general. But I remember a few years ago, when I was a finalist for the “unsung hero” award. I realized that just being nominated was exciting. Becoming a finalist was very fun.  I humbly and gracefully accept these nominations. But I am respectfully pulling myself out of this “game”.

I have been a health advocate since 2005. I started out a Chemo-Angel and I’m still in that program. I am a Card Angel, Chemo-Angel, prayer angel, and special assignment angel for the program. When I got Diagnosed with RSD/CRPS in 2007, RSDHOPE.org put me in touch with a “mentor”. This was someone who’d had the diagnosis much longer and could answer my questions and just sort of “take me under their wing”. Later, I became a Mentor for newly Dx CRPS patients, myself; and have been one ever since that time.

I have always worked alone, never really a part of any big group or “family”. I was part of the Orsini family at RSDHOPE.org, since 2007. I still worked alone, made up my own awareness events, and started my own fundraisers. In 2014, I made several RSD/CRPS bracelets. I raffled them off during the month of CRPS Awareness, which is November. I made $250 and sent it in to RSDHOPE.org..   Mom Orsini was so kind and thankful, I’ll never forget her kindness.

So now I have joined a bigger “family” and it is the U.S. Pain Foundation. I joined this group, this wonderful, loving and kind group of fellow “Pain Warriors” just last year in 2015.  I love being a part of the U.S. Pain Foundation family.  We look out for each other, and they look out for me. My husband and I went to their advocacy retreat in August, this Summer 2016. I/We had  some of the most awesome times of  our lives. We made real lasting friends and memories to cherish. I have found my little places in the pain world and they are with the  U.S. Pain Foundation and RSDSA. I have more than enough to keep me busy and they always tell us to “take care of ourselves first”. We cannot be any good for anyone else, if we aren’t taking care of ourselves first.

I have great respect for the people and the organization at WEGO Health. I have done some research for them this year and enjoyed the online discussions afterwards. I got to meet “Julie” and I have become close to her. I would and will always help them at any time they need an extra set of eyes, hands or ears. I feel like our organizations together can empower pain patients by working side by side and giving a sense of “belonging”. This then makes us feel less alone on our pain journey.

I am very proud that WEGO health recognizes health activists and advocates annualy. But I am very happy to have been nominated because that nomination alone is a little bit of validation that I am inspiring someone and/or making a difference. To me, this is my “winning”.  I want to do wonderful things and help the underdog, the sick, the people with chronic pain and invisible illnesses. I honestly, do not want to spend my time getting people to vote for me so that I can “win” an award. I have my “win” and it’s in my heart and soul. My “win” is hopefully that I’m helping others like myself. I pray that I am spreading HOPE and even inspiring others. We need to keep HOPE alive in order to make sense of some of the outrageous things that have happened lately in the world of chronic pain patients. We cannot let things turn dark or lose HOPE. We have each other and together we are empowered and we are strong.  This nomination is enough for me and I thank you so much for those because that is my win, just being nominated.

This month was very busy and the next few months are going to be very busy for me. I have full body /systemic CRPS, along with many other health and pain issues from “A to Z”.  I need to put my energy into raising awareness for Chronic pain and for U.S. Pain Foundation. Spreading optimism and positive energy is where I wish to be. I will also be very busy with the quickly approaching  month of NOVEMBER. It is the month of spreading awareness for my invisible most painful illness of Systemic CRPS! I will be on the front lines with RSDSA, raising awareness and hopefully fundraising for them during this upcoming November 2016. As I’ve said before, “HOPE” is a verb.  You must DO SOMETHING in order to have it. Then you must continue to do something in order to keep HOPE ALIVE. I just prefer to spend my time helping others, tweeting, writing and blogging for the pain community and the RSD/CRPS community. I don’t want to spend my time begging for votes from people and bothering everyone I know to vote for me every day so that I may be recognized or “win” something. I am winning now. I am winning half the battle just by trying to be as kind and loving as I can to all people I meet. I am winning by spreading awareness and optimism and Hope. If I can keep one person’s HOPE alive, then I have already won. If I can keep my HOPE going along with it, that ‘s all the better!

Thank you so much everyone for your kind words and your faithfulness. Thank you for these nominations below and I will wear them with pride. I want to keep inspiring and winning the war against stigma of invisible illnesses and chronic pain patients. I want to fight against our losses in the medication issues we face now days. This is where I want to focus my little bits of energy each day. I want to stay focused on the issues stated above and  not on myself and “me, me, me” . I prefer to focus on YOU, my chronic pain family  and on my darling  very young granddaughters.  With these I have JOY along with HOPE and that is the best of both worlds for a chronic pain patient. I thank you again and I humbly want to withdraw from the WEGO Health awards 2016. Good Luck everyone.

 

Some Have Sight, But No Vision!!!!!


Some Have Sight, But No Vision!!!

Hello Luvs…

    Guess what?? I’ve been nominated for “4” Health Advocate  activist awards through WEGOHealth.com!!  What this means is that people who I’ve possibly helped or people who know me feel that I am indeed an advocate for people with Invisible Disabilities, including but not limited to RSD/CRPS. It would be wonderful if some of my  readers could and would endorse me.  You see, the next step is that I need endorsements from people who know and trust me. Would you possibly be able to “ENDORSE” me?  Please….could you??? Would you please help me to continue helping others ? You can endorse me by going here;http://awards.wegohealth.com/nominees/suzanne-562 for the “Best in show: community or Forum”….OR to the nomination for “Health activist Hero” is at: http://awards.wegohealth.com/nominees?award_id=health-activist-hero and for the “Best in show: You tube” award; if you’d like to endorse me for that…..go to : http://awards.wegohealth.com/nominees/award/best-in-show-youtube and last but not least to endorse me for the “Best in Show” “Best Kept Secret”Award...go here: http://awards.wegohealth.com/nominees/award/best-kept-secret .   These are the 4 links to visit to endorse me for all 4 (four) of these WEGO HEALTH ACTIVIST AWARDS.  If you don’t know me at all, I surely don’t expect you to endorse me. Only if you know me and you believe in me and you believe & that I’m a good candidate,only then should you endorse me .  I would never ask anyone to endorse me if it wasn’t something they felt in their heart and soul.  So please, think about it, would you?  I don’t want this due to a need to make my ego grow….I don’t need this to be somebody, to be an advocate with a drive. I don’t wish this for selfish reasons. I only hope for this to help my CAUSE…..my dream that there will someday be cures for all of these horrible invisible diseases, and especially for the horrible, most painful of all Chronic Pain diseases; “RSD/CRPS” or aka “Complex Regional Pain Syndrome”. If I win any or some or all of these awards, it will just make my purpose be known a little bit more. Maybe someone will say “Oh Yes, that girl…the one who won the “Best in Show: Community Forum” or the “Health Activist Hero” award, she makes that support jewelry for a whole bunch of diseases. She writes about it, has several Social media sites about it and does “You Tube” informational video’s and performance video’s to catch people’s attention!  She’s that woman who has the “Support in Jewelry” website.  Then…maybe, …just maybe…. someone will buy a bracelet from me. I will in turn, keep giving the money that I get from the support bracelets (the majority of it, minus expenses) to Non-Profit RSD/CRPS groups like RSDHope.org. Then…after that…maybe one day…we will have that dollar amount to spread more awareness for…., do more research for….and support more education for these most painful Invisible Diseases, and then one day my dream will come true and there will be less pain.   Helen Keller once said that “alone we can do so little, but together we can do so much”!..She is my hero….she was blind, but she saw more than most people can see…she was deaf, but could listen with her heart….she was mute but said more than anyone I know!!! She said once…that the “most pathetic people, are those who have sight but no vision”…I have a vision. I am pursuing that vision and I won’t stop until I draw my last breath! I may not have money, I may not have a large family and I may have more pain than I can bear some days….but….I am richer than anyone I know, I have the best “family” because I know who truly loves me and I have experienced pain and do so every day. It reminds me not to ever give up!! Thank you….