Some Have Sight, But No Vision!!!!!


Some Have Sight, But No Vision!!!

Hello Luvs…

    Guess what?? I’ve been nominated for “4” Health Advocate  activist awards through WEGOHealth.com!!  What this means is that people who I’ve possibly helped or people who know me feel that I am indeed an advocate for people with Invisible Disabilities, including but not limited to RSD/CRPS. It would be wonderful if some of my  readers could and would endorse me.  You see, the next step is that I need endorsements from people who know and trust me. Would you possibly be able to “ENDORSE” me?  Please….could you??? Would you please help me to continue helping others ? You can endorse me by going here;http://awards.wegohealth.com/nominees/suzanne-562 for the “Best in show: community or Forum”….OR to the nomination for “Health activist Hero” is at: http://awards.wegohealth.com/nominees?award_id=health-activist-hero and for the “Best in show: You tube” award; if you’d like to endorse me for that…..go to : http://awards.wegohealth.com/nominees/award/best-in-show-youtube and last but not least to endorse me for the “Best in Show” “Best Kept Secret”Award...go here: http://awards.wegohealth.com/nominees/award/best-kept-secret .   These are the 4 links to visit to endorse me for all 4 (four) of these WEGO HEALTH ACTIVIST AWARDS.  If you don’t know me at all, I surely don’t expect you to endorse me. Only if you know me and you believe in me and you believe & that I’m a good candidate,only then should you endorse me .  I would never ask anyone to endorse me if it wasn’t something they felt in their heart and soul.  So please, think about it, would you?  I don’t want this due to a need to make my ego grow….I don’t need this to be somebody, to be an advocate with a drive. I don’t wish this for selfish reasons. I only hope for this to help my CAUSE…..my dream that there will someday be cures for all of these horrible invisible diseases, and especially for the horrible, most painful of all Chronic Pain diseases; “RSD/CRPS” or aka “Complex Regional Pain Syndrome”. If I win any or some or all of these awards, it will just make my purpose be known a little bit more. Maybe someone will say “Oh Yes, that girl…the one who won the “Best in Show: Community Forum” or the “Health Activist Hero” award, she makes that support jewelry for a whole bunch of diseases. She writes about it, has several Social media sites about it and does “You Tube” informational video’s and performance video’s to catch people’s attention!  She’s that woman who has the “Support in Jewelry” website.  Then…maybe, …just maybe…. someone will buy a bracelet from me. I will in turn, keep giving the money that I get from the support bracelets (the majority of it, minus expenses) to Non-Profit RSD/CRPS groups like RSDHope.org. Then…after that…maybe one day…we will have that dollar amount to spread more awareness for…., do more research for….and support more education for these most painful Invisible Diseases, and then one day my dream will come true and there will be less pain.   Helen Keller once said that “alone we can do so little, but together we can do so much”!..She is my hero….she was blind, but she saw more than most people can see…she was deaf, but could listen with her heart….she was mute but said more than anyone I know!!! She said once…that the “most pathetic people, are those who have sight but no vision”…I have a vision. I am pursuing that vision and I won’t stop until I draw my last breath! I may not have money, I may not have a large family and I may have more pain than I can bear some days….but….I am richer than anyone I know, I have the best “family” because I know who truly loves me and I have experienced pain and do so every day. It reminds me not to ever give up!! Thank you….

FIND OUT WHO WON THE “NOVEMBER IS RSD/CRPS AWARENESS


FIND OUT WHO WON THE “NOVEMBER IS RSD/CRPS AWARENESS

Hello Luvs,

I just wanted to head you toward one of my “Support In Jewelry” website/blogs to check out WHO won my RSDHOPE  “Roar for November (is RSD/CRPS Awareness Month)” . Find out how much I raised for the CAUSE, who won the 6 raffle drawing RSD/ CRPS bracelets and who won the special RSD/CRPS,  Swarovski Crystal Awareness bracelet that I made for this fundraiser!!  Check it out if you get a moment!! My CAUSE can also be found at : http://www.facebook.com/causes/R.A.S.E.forInvisibleDiseases   …..thank you to all of those who participated, you are awesome!! You are not awesome just for donating…but you are awesome because instead of just complaining about the pain and the disease, like me, you are DOING something about it!!

PLEASE Check out My “Rebel Mouse” Awareness/Support Page


PLEASE Check out My “Rebel Mouse” Awareness/Support Page

This is a fairly newer website but it’s pretty cool, because everything that you put anywhere, usually shows up there! I have so much awareness and support information up …so please check it out!

Dysautonomia- information for you


Dysautonomia- information for you

Hello Luvs,

This is a URL to a PDF file that I have gotten from the STARS group in UK who helps people with Autonomic System failure or “ASF” aka “Dysautonomia”. Just “Click” on the words above …where it says”Dysautonomia-Information For You”. Many of us with RSD/CRPS have this system failure or issues at the very least. All of us with POTS/NCS -Syncope issues, have this also…check it out. Please note that it is 197 pages. But you can read it without saving or printing it, thus saving space if you are on a tablet or Ios device phone or an Android. Just click and then read, because it will take you to the written information!…

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